Thanksgiving | Health WTF
Nov. 27th, 2013 12:30 amI'm really, really excited about Thanksgiving :D Everything is coming up Millhouse, in that regard. My Dad got the time off to come up from Key West, which I am so happy about. Nancy managed to get out of Massachusetts on time (she was waiting on very overdue babies) and is now in Florida in time to be here, which I am so happy about. I spent an hour on the phone and computer with Robby helping him find the right combination of rides and busses and trains to get here from Lake City, which I am so happy about. Gloria and Shaun will also be here :D Laura will be here with her kids for at least part of the evening :) Grant's got this whole week off of work, and the weather is taking a dip down into the 70s Thursday. Just... ANTICIPATION! My kids are all counting down and the recipes are piling up. We've got all these white Christmas lights and candles ready for the deck.
BUT. Today was sort of a drag. I stayed up very, very late (2-3) listening to Robby because he's having a hard time and just needs to vent. Which is ok, I love him, but made getting up to take Isaac to school and write a theater paper more challenging. Today was also my group's theater presentation, for that class - Grant came along with me to carry big props and watch our play (skit, really...) I was a drunken, pregnant Texan, which was fun and funny for a little while. He enjoyed laughing and taking pictures while someone did my makeup with a pillow stuffed in my shirt, and we all got As and decent comments afterward... then Grant and I went to eat thai for lunch, which was also nice.
After that, though, I sat around for the entire afternoon AND INTO THE EVENING, at my doctors office. Never mind that I am frantic to be cleaning and cooking at home while also simultaneously struggling to keep my eyes open.
Eventually I saw the doctor - I was back at my MD to see my latest set of labs and get my referral, today, and she tells me this:
SED rate: 70, up from 60
Rheumatoid Factor: 11, up from 7 (but still neg by this office's scale - old rheumy said over 10 was positive)
C reactive protein: positive, present, don't know/remember details
So for all of that she's sending me on to a new rheumatologist (old one closed, which is why I'm there with her), but - I'm apparently SEVERELY deficient in B-12 and folate. Which is not something I'd even considered or previously heard anything about. She actually said my numbers are the worst she's ever seen, and I've been going to this same MD since I was 5 years old so I would assume she's seen many. She said she doesn't know how I'm getting out of bed with levels this low, which is incredibly validating, because IT'S FUCKING HARD.
So I got a B-12 shot before I left the office (which made me pretty nauseus, and gave me an immediate headache), and have to get them weekly, and was prescribed folic acid to take every day, but clearly we need to find out why those numbers are so low.
I of course came home to try to e-search all of this myself, and what the e-searching keeps coming back around to is...Celiac disease O_o I don't know. But that would certainly explain why quitting gluten* made such a wildly crazy difference, and cheating has caused me to take such a turn for the worse :/ It's clearly just another avenue to pursue and talk about with doctors, but, damn - the symptom list, with the destruction of tooth enamel**, joint pain, heartburn, and the way surgeries can trigger it (I did have intestinal surgery...), just, bleh.
That's a whole other ball of complications and long term plans to consider. I'm going to talk to my MD about it tomorrow, since Celiac is a totally different specialist and I (clearly) don't know what the hell is happening in my body, but - I'm kind of up in the air about how all the advice out there is like, "IF YOU THINK YOU MIGHT HAVE CELIAC, DO NOT STOP EATING GLUTEN SINCE THAT WILL SKEW YOUR TEST RESULTS - oh but if you do have celiac, by all means stop eating even trace amounts right this second since it's causing terrible damage to your body and could even kill you if left untreated." Uh - ? I get it, but, I'm having a hard time anyway. Thinking "out loud."
There's also something called Pernicious Anemia that is terrifying in a whole other way, that is a contender as it is an autoimmune disorder that destroys your ability to absorb B-12 and folate, too. I'm definitely not doing any more independent research until after I've been to a specialist or two because it will just drive me crazy.
Here's hoping I have some renewed energy from the shots, soon, anyway.
*which I did because of rumors and hypothetical alternative theories about gluten agitating/causing RA, which my father has, and I was afraid I was getting due to my new joint pain and fatigue
**see a couple of entries down, when I explained that I need FIFTEEN FILLINGS due to demineralization?!
BUT. Today was sort of a drag. I stayed up very, very late (2-3) listening to Robby because he's having a hard time and just needs to vent. Which is ok, I love him, but made getting up to take Isaac to school and write a theater paper more challenging. Today was also my group's theater presentation, for that class - Grant came along with me to carry big props and watch our play (skit, really...) I was a drunken, pregnant Texan, which was fun and funny for a little while. He enjoyed laughing and taking pictures while someone did my makeup with a pillow stuffed in my shirt, and we all got As and decent comments afterward... then Grant and I went to eat thai for lunch, which was also nice.
After that, though, I sat around for the entire afternoon AND INTO THE EVENING, at my doctors office. Never mind that I am frantic to be cleaning and cooking at home while also simultaneously struggling to keep my eyes open.
Eventually I saw the doctor - I was back at my MD to see my latest set of labs and get my referral, today, and she tells me this:
SED rate: 70, up from 60
Rheumatoid Factor: 11, up from 7 (but still neg by this office's scale - old rheumy said over 10 was positive)
C reactive protein: positive, present, don't know/remember details
So for all of that she's sending me on to a new rheumatologist (old one closed, which is why I'm there with her), but - I'm apparently SEVERELY deficient in B-12 and folate. Which is not something I'd even considered or previously heard anything about. She actually said my numbers are the worst she's ever seen, and I've been going to this same MD since I was 5 years old so I would assume she's seen many. She said she doesn't know how I'm getting out of bed with levels this low, which is incredibly validating, because IT'S FUCKING HARD.
So I got a B-12 shot before I left the office (which made me pretty nauseus, and gave me an immediate headache), and have to get them weekly, and was prescribed folic acid to take every day, but clearly we need to find out why those numbers are so low.
I of course came home to try to e-search all of this myself, and what the e-searching keeps coming back around to is...Celiac disease O_o I don't know. But that would certainly explain why quitting gluten* made such a wildly crazy difference, and cheating has caused me to take such a turn for the worse :/ It's clearly just another avenue to pursue and talk about with doctors, but, damn - the symptom list, with the destruction of tooth enamel**, joint pain, heartburn, and the way surgeries can trigger it (I did have intestinal surgery...), just, bleh.
That's a whole other ball of complications and long term plans to consider. I'm going to talk to my MD about it tomorrow, since Celiac is a totally different specialist and I (clearly) don't know what the hell is happening in my body, but - I'm kind of up in the air about how all the advice out there is like, "IF YOU THINK YOU MIGHT HAVE CELIAC, DO NOT STOP EATING GLUTEN SINCE THAT WILL SKEW YOUR TEST RESULTS - oh but if you do have celiac, by all means stop eating even trace amounts right this second since it's causing terrible damage to your body and could even kill you if left untreated." Uh - ? I get it, but, I'm having a hard time anyway. Thinking "out loud."
There's also something called Pernicious Anemia that is terrifying in a whole other way, that is a contender as it is an autoimmune disorder that destroys your ability to absorb B-12 and folate, too. I'm definitely not doing any more independent research until after I've been to a specialist or two because it will just drive me crazy.
Here's hoping I have some renewed energy from the shots, soon, anyway.
*which I did because of rumors and hypothetical alternative theories about gluten agitating/causing RA, which my father has, and I was afraid I was getting due to my new joint pain and fatigue
**see a couple of entries down, when I explained that I need FIFTEEN FILLINGS due to demineralization?!