(no subject)
May. 3rd, 2007 10:53 amHey everyone. This is Tina. It's my first (slow, dizzy :p) walk down to the computer room. Hence, my first glimpse of the internet since our transfer (aside from G printing some of my comments and bringing them to our room).
I'm blown away, you guys. The raffle, the grocery delivery, tinaandelise.com, all of it...all the prayers and thoughts and donations. It almost doesn't seem real. There's no way to say Thank You enough.
I wanted to fill in some gaps where we've only recently heard things, or where something got "lost in translation":
Nancy and the head of obstetrics here are both theorizing that what happened to Elise is that she somehow got in a position to compress her cord in utero, before labor had even begun. We don't know how severely or for how long this deprived her of oxygen, only that it did. The afternoon before I went into labor, she passed a non stress test with flying colors - everything still looked absolutely perfect in there. But sometime probably later that day, there was compression, which put her into distress enough that she passed a LARGE amount of meconium. And one of the things that oxygen deprivation does is initiate a gasp reflex that caused her to aspirate some of the mec into her lungs (normally that wouldn't happen as they aren't breathing in there - Jake had a ton of mec and it didn't bother him at all). She's shown signs of trouble in about every major organ system...her heart while I was in labor, her lungs when she was first born, her kidneys for the first day or two, her brain in the form of seizures, and the unifying factor that causes all of these things, is oxygen deprivation. The good news is that small babies are amazingly resilient and a lot of these kinds of things can sometimes resolve themselves as continued growth and development goes on, in ways they couldn't in older children or adults.
I was really happy with how labor was going and how well I was handling it and all that. Nancy and I both believe I was entering or in transition when she arrived at the apartment. We're also both REALLY really grateful that Elise gave us a "clear sign" that there was real trouble, and as such we wasted no time getting here. I actually had a c-section wearing all of my jewelry and my bra. She was wonderful to have with us - she got us here quick, bulldozed right through protesting admissions people and security, and checked me in herself so Grant could stay with me. She also remembered things I was in no state of mind to remember, like preferences we had for what we did and didn't want them to do to our baby immediately after birth, and she stuck around to get us "good nurses" and put her students "at our beck and call" before she left. The staff here has been wonderful...nobody has even implied or looked at us weird or anything as if we caused any of this. I was kind of bracing myself for a lot of "What did you expect?" after how Jackson treated us with Jake, but it's not that way at all. I've actually had hour long conversations (several of them), one on one, with OBs, social workers and nurses who seem to respect our decisions and understand why we made them, and agree that this all just sucks.
Someone yesterday told us that they do think Elise has some significant brain damage, but in the temporal lobe, which has no effect on higher level thinking, only motion - things like seizures, ticks, etc. They also seemed to think that she may be able to be discharged as soon as a week or two from now, but on medication(s) to keep her from seizing. As she grows, we'll have to adjust the amounts based on her weight and that is a trial and error process that is mostly based on when and how often she starts seizing despite what she's already taking. Many babies outgrow the needs for the meds and the seizures completely by 6 months old, though.
Her MRI yesterday was postponed when another baby had a major emergency, so she had it this morning instead. We're supposed to meet with a bunch of people including a group of pediatric neurologists this afternoon, to get a more complete picture of everything all these tests are showing. Right now she has a small oxygen tube going to her nose, a catheter because she wasn't peeing on her own (but that she is producing pee and it is going to the bladder means her kidneys aren't in the danger we thought), a couple of wires monitoring things via her cord stump, and an IV for fluids and antibiotics to keep the mec in her lungs from becoming an infection. She has done well breathing on her own, though, and never needed to be intubated.
I'm dying to nurse her. I miss her in the hospital bed. It's way, way too bitterly familiar for me to be in a baby-less hospital room, struggling to sit up...I've been maintaining a pretty strong disconnect...it's like I have to just not let myself feel a whole lot of this, because as soon as I start to it's like a tidal wave that will kill me or something. And that makes my whole body clench up and then I'm in really, really intense pain and just kind of lose it altogether. I actually contemplated asking to be sedated the other night, which I've never done before.
I'm trying to focus on the good news from her. And drink in the little bits of contact. The kids all came and visited yesterday and that was good, too. I miss them. And, really, I can't imagine how this would be if my mother were not here and with the big kids, or if we were out of money. It seemed like such a monumental, miraculous thing that between Grant's business and the tax return, we actually put together an $8k budget for April and could do this. But of course what that means is that we exhausted every resource (selling my old car that had sat in the yard for years, yard sale, all kinds of stuff) and when curve balls started coming we had no where else to pull from. I think that on some level all of you have been keeping my faith alive, because even though what's happened to Elise and I seems so totally contrary to having been led here....the miracles are still coming and we're still provided for. I am confused about everything. I know this c/s was necessary, and it went very smoothly, so I'm not left with that sense of being cut for nothing or having my own complications...but to be honest those things are the least of my concerns right now anyway. I think I'm starting to ramble and my head feels kind of foggy from oxycodone and lack of sleep, so I will wrap this up...
I love you all. I appreciate everything so, so much. I don't know when I'll get down here again but I'm sure Grant will continue to update, and probably bring me comments/emails as well. He is amazing. I wish I had a little more right now, to support him with.
:*)
I'm blown away, you guys. The raffle, the grocery delivery, tinaandelise.com, all of it...all the prayers and thoughts and donations. It almost doesn't seem real. There's no way to say Thank You enough.
I wanted to fill in some gaps where we've only recently heard things, or where something got "lost in translation":
Nancy and the head of obstetrics here are both theorizing that what happened to Elise is that she somehow got in a position to compress her cord in utero, before labor had even begun. We don't know how severely or for how long this deprived her of oxygen, only that it did. The afternoon before I went into labor, she passed a non stress test with flying colors - everything still looked absolutely perfect in there. But sometime probably later that day, there was compression, which put her into distress enough that she passed a LARGE amount of meconium. And one of the things that oxygen deprivation does is initiate a gasp reflex that caused her to aspirate some of the mec into her lungs (normally that wouldn't happen as they aren't breathing in there - Jake had a ton of mec and it didn't bother him at all). She's shown signs of trouble in about every major organ system...her heart while I was in labor, her lungs when she was first born, her kidneys for the first day or two, her brain in the form of seizures, and the unifying factor that causes all of these things, is oxygen deprivation. The good news is that small babies are amazingly resilient and a lot of these kinds of things can sometimes resolve themselves as continued growth and development goes on, in ways they couldn't in older children or adults.
I was really happy with how labor was going and how well I was handling it and all that. Nancy and I both believe I was entering or in transition when she arrived at the apartment. We're also both REALLY really grateful that Elise gave us a "clear sign" that there was real trouble, and as such we wasted no time getting here. I actually had a c-section wearing all of my jewelry and my bra. She was wonderful to have with us - she got us here quick, bulldozed right through protesting admissions people and security, and checked me in herself so Grant could stay with me. She also remembered things I was in no state of mind to remember, like preferences we had for what we did and didn't want them to do to our baby immediately after birth, and she stuck around to get us "good nurses" and put her students "at our beck and call" before she left. The staff here has been wonderful...nobody has even implied or looked at us weird or anything as if we caused any of this. I was kind of bracing myself for a lot of "What did you expect?" after how Jackson treated us with Jake, but it's not that way at all. I've actually had hour long conversations (several of them), one on one, with OBs, social workers and nurses who seem to respect our decisions and understand why we made them, and agree that this all just sucks.
Someone yesterday told us that they do think Elise has some significant brain damage, but in the temporal lobe, which has no effect on higher level thinking, only motion - things like seizures, ticks, etc. They also seemed to think that she may be able to be discharged as soon as a week or two from now, but on medication(s) to keep her from seizing. As she grows, we'll have to adjust the amounts based on her weight and that is a trial and error process that is mostly based on when and how often she starts seizing despite what she's already taking. Many babies outgrow the needs for the meds and the seizures completely by 6 months old, though.
Her MRI yesterday was postponed when another baby had a major emergency, so she had it this morning instead. We're supposed to meet with a bunch of people including a group of pediatric neurologists this afternoon, to get a more complete picture of everything all these tests are showing. Right now she has a small oxygen tube going to her nose, a catheter because she wasn't peeing on her own (but that she is producing pee and it is going to the bladder means her kidneys aren't in the danger we thought), a couple of wires monitoring things via her cord stump, and an IV for fluids and antibiotics to keep the mec in her lungs from becoming an infection. She has done well breathing on her own, though, and never needed to be intubated.
I'm dying to nurse her. I miss her in the hospital bed. It's way, way too bitterly familiar for me to be in a baby-less hospital room, struggling to sit up...I've been maintaining a pretty strong disconnect...it's like I have to just not let myself feel a whole lot of this, because as soon as I start to it's like a tidal wave that will kill me or something. And that makes my whole body clench up and then I'm in really, really intense pain and just kind of lose it altogether. I actually contemplated asking to be sedated the other night, which I've never done before.
I'm trying to focus on the good news from her. And drink in the little bits of contact. The kids all came and visited yesterday and that was good, too. I miss them. And, really, I can't imagine how this would be if my mother were not here and with the big kids, or if we were out of money. It seemed like such a monumental, miraculous thing that between Grant's business and the tax return, we actually put together an $8k budget for April and could do this. But of course what that means is that we exhausted every resource (selling my old car that had sat in the yard for years, yard sale, all kinds of stuff) and when curve balls started coming we had no where else to pull from. I think that on some level all of you have been keeping my faith alive, because even though what's happened to Elise and I seems so totally contrary to having been led here....the miracles are still coming and we're still provided for. I am confused about everything. I know this c/s was necessary, and it went very smoothly, so I'm not left with that sense of being cut for nothing or having my own complications...but to be honest those things are the least of my concerns right now anyway. I think I'm starting to ramble and my head feels kind of foggy from oxycodone and lack of sleep, so I will wrap this up...
I love you all. I appreciate everything so, so much. I don't know when I'll get down here again but I'm sure Grant will continue to update, and probably bring me comments/emails as well. He is amazing. I wish I had a little more right now, to support him with.
:*)