altarflame: (deluge)
After a long stall in my weight loss, during which my hernia grew and my back pain increased and my eagerness to get in the freaking OR started to actually exist... I somehow felt incapable of (and/or uninterested in) putting any limitations on my eating. Too anxious about school, too sleep deprived to deal with any form of diet, too many roadtrips and whole days out of the house and too many priorities all around to make this tired issue another one.

The point is, I realized it sounded doable out of all the options, so I've went flour-free again. This is day 6, I believe, and the process has followed the same pattern I've experienced before - I get really depressed around day 3, less so on day 4, and then that part is mostly over. I feel way less bloated and experience less of the constant stomach discomfort I generally experience otherwise. I am hungry more often, and eat more overall. And, I lose at least half a pound every day, regardless of how I glut myself on meats, dairy, sugar, etc (in addition to produce, I mean, but nobody would expect produce to inhibit weight loss). I tend to feel way more flexible and comfortable when I haven't had glutinous things in awhile, and then I realize how used to feeling sluggish and hurting in ways that make me more sedentary I often am. It's also not hard at all, to just not eat the stuff. Considering how difficult most dietary restrictions are for me, that's pretty significant. Usually between 10-15 pounds down the effortless weight loss stops and I have to try in other ways, for that, though it is easier than it would be since floury shit is a lot of weight watchers points and I don't mind exercising as much when I'm not bloated all the time.

I was trying to figure out why I went back to eating flour last time, after about 5-6 months off that left me thinner and more energetic, and then I remembered - I was on vacation with Grant, just the two of us. We discovered a fabulous local farmer's market near our hotel, with fresh loaves of french bread, fresh mozzarella from some small farm, fresh organic herbs, heirloom tomatoes, artisinal salami, and great wine. It all seemed so wholesome and natural and irresistable, and it was a special occasion, so we bought it all and had it for lunch in the park, and then as a picnic dinner in the hotel room later.

And then, legit, it was NOT ROMANTIC AT ALL when I was in terrible pain and could barely button my pants, for the next 3 days. Also not romantic spending way too long in the bathroom over and over. But I had already messed up my system, so when we went to my friend Kristin's house up there and she started cooking me homemade pies and putting eggs and avocado on toast I went with it. By the time I got home from that trip, I was already getting used to my old-normal level of gastric discomfort, using the bathroom way less regularly, and regaining weight.

Then, in my quest to figure out pernicious anemia, my gastro tested me for celiac and I didn't have it, and some scientific articles came out that said the gluten free craze was a placebo-esque fad and I basically said, "oh, fuck it. Hand me a brownie."

Well. Whatever. This is very clearly a real and significant improvement, and if it's just a leap in the nutrient density of everything I eat and a reduction in empty carbs, so be it. If gluten really is an inflammatory substance that contributes to the horror show that is my leaky gut, well, I've got my bases covered.

Anyway, food related: I've been making frittatas 3-5 times per week, lately. I wilt a bunch of baby kale and spinach in irish butter, get it out of the pan, spray the pan (I don't have anything nonstick so this is necessary), put in a mix of 10 beaten eggs, almond milk, salt, fresh basil leaves, and tons of good shaved parmesan. Dump/spread all the wilted greens back in. Put more basil and parm on top. Move to the preheated oven til it's cooked through. Cut and serve with a pizza cutter. SO good. Ananda, Aaron, and Jake love it and tear it up every time. Isaac will eat a piece in a pinch. I tend to set it out for everyone with a lot of cut and salted tomatoes and avocados, knowing that is the only part Elise is ever interested in. Along with a huge freezer bag of belgium waffles from the last time we intentionally made way too much so they could be toasted as needed, greek yogurt, leftovers from whatever we most recently had for dinner, and a neverending stream of clementines and blueberries, this is what my kids subsist on until dinner every day.

Dinner tonight was Grant's creamy potato leek soup, which is really fucking good, but as he made some jazzed up cheesy herb bread for everyone else and I'm not eating bread I browned mushrooms and steamed/buttered broccoli, to throw in my bowl(s). Yum. I also ate a bunch of riesen while they had milano cookies. I'm telling you, this is really not hard ;)




My day was great!
-Last night I met Kathy and her kids at Laura's, and we all had dinner/talked/generally hung out until late, when I returned home and watched shows and ate things with Annie until way too late, and it was all without consequence becaaaaause...
-Grant took Elise to Girl Scout Camp this morning so I could sleep in. She loves it there and does great stuff like swim, hike, craft, and sing songs all day, so I don't feel guilty at all watching Stats lecture videos, washing dishes, and watering/pruning plants for most of the afternoon after sleeping the morning away. She is the needy, energetic, more chronically bored child when home, who feels like she's really suffered if 10 minutes have passed entertaining herself, and the three little kids just bicker a lot when they're all here without structure and then tell on each other constantly. Her being at camp has made the days seem SO simple. Jake and Isaac just read their latest library books, play Minecraft, and build with Legos the whole day. They also took a walk and got some starfruit from one of our neighbors that is always giving us excess fruit off of his trees. I think Isaac + Elise is the killer combo, because usually Jake can get along fine with either of them for extended periods. And, picking her up is fun because she's exuberant and bouncy and full of stories about how amazing and wonderful camp was.
-I took the time to notice how pampered and generally blessed I am that I can do things like decide on a whim to go browse around one of my favorite stores for awhile, and swing by somewhere to pick up a few groceries on the way home from grabbing Elise. I also generally enjoy it a lot when Grant's working from home and I can take the car wherever I have to go, because it has air conditioning (moment of respect; this is serious - AIR. CONDITIONING.) and I'm just so over the van.
-SEX. Finally. So much better.
-Reading to the littles was fun at bedtime. I read Elise The Wolves in the Walls by Neil Gaiman, which I'd actually never read before even though we've had it here for years. She was almost absurdly into it. I should take video of her some time, she is truly hilarious. Jake and I are to the Department of Mysteries in The Order of the Phoenix, which means Shit Is Getting Real but also that's just a fascinating chapter as they move between all the rooms full of bizarre experimental magic. Isaac and I have started The Magician's Nephew, aka Narnia #1, and he is talking me into extra pages every time because (BWAHAHAHA) despite his concerns that they were going to be "kind of boring and dumb" he's been totally sucked in from the first night.
-I sat down with the big wall calendar and wrote all over it, and there is just something cathartic about putting it all down where everyone can see and feeling like I've got something under control.
-Jake finally agreed that I could trim his bangs, so he has eyes again.

My day was kind of awful!
-I'm really worried about Aaron. This is every day, as he's seemed chemically depressed for a long time, and before we figured out it was depression I thought he had some kind of chronic illness and was taking him from doctor to doctor because he gives himself tons of seemingly medical symptoms (periodic low grade fever, frequent swollen glands, stomach aches, headaches) with his misery. But every non-mental possibility has been ruled out. He is totally against therapy or medication and we've been skating a line that makes me feel obligated to force him against his will for a year or more, now. We talk about it increasingly often, even though I am normally dead against forcing anyone into talk therapy because that seems pointlessly ineffective. At 14, I also feel like he has a real say in the meds decision... He does everything you're "supposed" to do - go out in the sunshine, drag himself around to exercise, stick with things like dance and join roller derby even though he's sometimes loathing them because he knows exercise is important. He seeks social interaction and will sometimes just write everything he's thinking and feeling down, so that's good. He still likes talking with Grant and with me (about things other than his misery, which he never wants to talk about) and doing things with us. I struggle to get him to take every supplement ever shown to combat depression (probiotics, fish oil, folic acid). But...he cries randomly all the time, often at the drop of a hat, sometimes for long periods. Like there are never more than a few hours between his crying spells. He can't sleep at night. He feels and looks very, very, very sad almost all the time. The heaviness just radiates off of him in waves. Ananda has found ways to make fun of him for it that make him laugh in spite of himself, and Isaac and Jake tiptoe where they used to irritate him in little brother ways because they're actually worried about him. His girlfriend broke up with him and that set off this latest crescendo, but it's been over a month straight of this now, and he was also like this before that relationship (which really only existed via texting and only for like 2 months, not that 2 months of texting and a few hugs in the hallways don't matter when you're in 8th grade), too. Crying in classes at school. He's never mentioned anything suicidal but I really don't think he would, either. I waver constantly between thinking he'll be ok, he still has interests and hobbies and gets excited about some things, still smiles and laughs every day as well, he's a teenager...and thinking, fuck, should I like him checked in somewhere? I mean that's crazy and way too drastic, right? I've talked to my therapist about Aaron, and to Isaac's. They agree it's subjective and basically tell me stuff I already know (keep the lines of communication open, encourage him to blah blah blah, try framing x and y this way or that way). He's going to start dance intensives soon so he'll at least be having a better sleep schedule and more structure enforced, as I don't think this lounging and wandering sort of summer he's having is really doing him any favors.
-I have a deep crack on the outside of my left heel that's SO PAINFUL every time I step with that foot. I'm favoring it like crazy. I've ped-egg'd and buffed it down twice, and keep slathering it in lotion, but it's terrible. I toe walk on that side and limp around, when home. I grimace and walk normally out places. That foot is just a damn mess, I broke a toe last year and never went in for it and I think it healed badly. Ever since I have all sorts of stupid issues, a strange little new bump here and a really tender spot there. I suppose at some point I'm going to have to buckle down and go to a podiatrist but the thought of seeking out a new specialist and making more appointments for myself (I already get a b-12 shot and go to counseling every week, in addition to all the kid things I cart people to) is so unappealing that I'd honestly rather just limp and hope, for now at least.
-Also sat down with the budget today, after getting a bill from Isaac's psych and just...GAAAAH. So many extra things all piling up at once :/
-I'm basically ignoring texts from some of my favorite people because I just don't want to start a catch up conversation right now.




Ananda came to me out of nowhere and asked if she can be homeschooled again and start dual enrollment at the college this fall. There are so many pros and cons involved. We've had two talks now, and I've hashed it out a bit with Grant. She's not 100% sure that's what she wants, and I'm not 100% sure I'm willing to do it, but it's looking like a possibility. She has places she wants to volunteer, and has spent a lot of time this summer with homeschooled friends who did/are doing dual enrollment. It will be a massive logistical pain in the ass for me if it goes this way, as homeschooled high schoolers who want real diplomas have to have real transcripts detailing every credit they complete, and must earn traditional grades that get averaged - otherwise, you can basically take the GED whenever you want. Between that and my not really knowing all the ins and outs of dual enrollment (credit minimums and maximums, what you have to fill out for the financial vouchers, who at the county approves it all, etc) it's fairly tedious before we get into things like me NOT wanting to have it out with her about completing work for me again, as I've gotten spoiled on that being between her and other teachers - and she "performs" for her teachers and does well as though there's no other option, unlike the endless procrastination and whining it started to be with me towards the end. And, it would mean acquiring outside help teaching her higher maths, when she has a great math teacher at her school, and that we'll be adding extra variables to daily life in the form of places she must physically get to regularly that other people aren't already going to.

I try very hard not to let things like "what is more convenient for me" play in to our choices for them. I'm not sure this is best for her on a purely "about her" level either, though. She LOVES her art teacher at school and the things she learns in his class, for instance, and the week of sleep away camp they do, and has a whole squad there that energizes her. I keep wondering how much of this is about relatively dumb shit, in the grand scheme of things, like not wanting to start getting up really early every day again, or enjoying having her hair dyed crazy colors for a couple of months and not wanting to switch back. Mostly when we talk it seems to be about a desire to have a diploma and AA sooner than she otherwise could, which, you know, why? Slow down. Enjoy your damn youth. Except that, obviously, nobody can learn to do that without hindsight. We have to decide before it's time to buy all the back to school stuff.
altarflame: (deluge)
I am so mentally exhausted.

Ananda is tired all the time. Part of this may be due to correctable environmental stuff we're learning at the allergist, but part of it is definitely regular ol' insomnia making mornings a drag. She's SO MEAN AND RUDE AND RIDICULOUS, in the mornings. It's really hard to deal with sometimes, as none of my kids normally talk to me like that, but also because she and I especially usually have a great relationship. She's not really saying any terrible words, she's just saying things like, "Give me a minute" and "Hold on" and "I'm trying Mom" in the most accusatory, loud, pissed off ways you can imagine. And if I DON'T nag her (which I viciously loathe doing), she basically won't get ready/she'll make Aaron late. So I do, and she responds as though she feels about me like I feel about the alarm on my phone (perish the thought). She's also been having the nerve to be visibly irritated and eye roll-y and just awful about, say, me having her favorite foods ready for breakfast and/or packed lunch.

When it isn't morning, all is well. She's got a couple of great friends and teachers she raves about, at school. Older, homeschooled weekend friends. Derby practice she adores. She's getting good grades and drawing all the time and eager to show or tell me some hilarious thing pretty often. She's very helpful in the afternoons and evenings, around the house. There IS still the hour-at-a-time in the bathroom issue but overall she's experimenting with makeup and enjoying the only door in the house she can lock and we have another bathroom, so who cares.

I went and got numbing cream for her arm and mine, for tomorrow morning when we both go back to the allergist for intradermal testing (needle instead of plastic thing, deeper in the skin, bleeding, ow). She is putting on a brave face about the whole process for someone who used to be so opposed to anything of the sort.

Recent Convo...
Me: you're not gonna believe what I did today.
Ananda: hmm?
Me: I got a bowl of coffee Heath bar ice cream, and I put a partially frozen chocolate snack pack on it as a topping.
Ananda: MOM!
Me: It was awesome!
Ananda: Well, duh.

In one hour recently, she accidentally called her BFF "Mom" in a conversation and then when her teacher was calling for them to turn in their notes, she accidentally referred to hers as her "manuscript." She was like, "I've been to two author events in the last week! I live with a writer!"

Aaron is super emo about his new (requested) haircut. He actually wore a hood the whole first day back at school, thus prolonging the shocked reactions he then had to deal with today. His chronic disorganization and scatterbrained ways are making me nuts at times.
"Mom, my spider needed to eat like 3 days ago, we have to go get it crickets right now or she'll die!"
"Mom I need a math workbook for class by tomorrow, don't you remember me mentioning this a month ago? I don't know what it's called but I think I'll recognize it if we do a Google image search."
"Mom I'm going to be bringing a note home from my math teacher, because I didn't log any of the time I was supposed to on Kahn Academy over the last few weeks."
"Mom, we have a field trip to somewhere, I don't have the form but I think you should come in the office with me when you drop me off because we were supposed to have it turned in by Friday. It costs some amount of money."

Those are all this week. It's only Wednesday. I THINK I strike a pretty good balance between helping him out and making him face his own consequences. It's this constant battle to guide him into setting up systems to be more on top of things, and then seeing where the holes in the systems are. For what it's worth he's doing more, and better, than he ever has (by a long shot) - he gets up right away and gets ready quickly, keeps track of all his school notebooks/supplies/dance laundry, and takes the right stuff for the day on "A" and "B" days. He's getting good grades and becoming less awkward as he gets used to his height, deep voice, very hairy legs, and so on. He's 5'7", btw.

I actually fantasize about taking his headphones out back and beating them flat with a hammer - I have to either scream myself hoarse, go get him, or send somebody anytime I need him for anything because he's always got them on. He has these cushy big noise cancelling headphones we were foolish enough to buy him for his birthday.

He's also a ball of mucus. It's nonstop nose blowing, sniffling, coughing, repeat, for weeks. I can't even keep track of what is a new illness and what is lingering illness, since the beginning of November. The allergist gave him Nasonex and recommended sinus rinses, which I've taught him to do and helps a lot - for about 10 minutes.

His piano playing has moved from amazing to transcendent. I'm not even kidding. It makes everything better for a little while, anytime he plays.

He's going with his dance class to see The Nutcracker. I'm excited for him. We know a lot of ballet dancers who are in that show year after year, but he's never been before. The last time his dance class took a field trip, it was actually to his old studio, where all his old teachers flipped about his height and his being in school now and generally tried to woo him back (none of us have the resources for that at the moment).

When we're just hanging out, the two of us, like walking back from an appointment or talking in the van on the way over to school, it's unreal how well we get along. If you take all the logistical stuff out of the equation, he and I just have very compatible personalities and have a really easy time being together. Sometimes I have to stay up late with him or take him out somewhere alone just to remember that. I was telling him yesterday how amazing it is that someone ELSE has to try to make him do all his schoolwork, now, and he was saying he likes that better too - and then actually said, "You were so nice, I totally took it for granted how nice you always were about it all."

Isaac is coughing, and coughing, and coughing. He caught whatever Aaron has had over Thanksgiving break. Monday, Tuesday and today I've woken him up, he gets ready, and it's clear by the time I'm driving everyone else that he just can't go to school. He feels ok otherwise, but the booming, violent, uncontrollable coughing fits are just awful. Leaving him gagging and choking sometimes, making him teary often - he coughs like I do :/ He's sleeping semi-upright in the tv room tonight, prescription cough syrup having done nothing, with a humidifier full of Vicks liquid nearby. I read to him for over an hour, during which Grant ran and got him popsicles and some other things, and he's heart breakingly sweet and appreciative about it. There are lots of periods of time when he feels fine, but then the coughing starts again. It's worst in the mornings and at night, like most sickness tends to be.

He is so eager to help out with anything and everything, and so reasonable, and just has such a high threshold for discomfort in general from all the years dealing with his own anxiety and digestive problems - it's kind of unreal. Sometimes I think he's the most mature person in the house.

I am having a GREAT time reading him Order of the Phoenix - he's so into it and this is probably my favorite HP book. He practices his clarinet (and leaves it out all over the house with his stand and case) a lot. He's got music for the GMYS holiday show, music for the school holiday show, and music he just wants to learn on his own.

I went down to their school today, to pay for a field trip of Isaac's, and buy tickets to their holiday show, and get his makeup work for missed days. And I couldn't do any of those things. It was so stupid. Nobody in the office even knew how to help me or where to direct me to, for ANY of my requests. They told me to try to email his teachers about the work, but I don't have email addresses for all 5 of his teachers, only 2 of them. The lady behind the desk didn't have those, and recommended seeing if they're available on the parent portal. Logging into their parent portal requires a student ID for each kid, and my parent PIN for each kid (it's different, I have 5 different parent PINs). I tracked down about 7 of those 10 numbers when I went searching various desks and folders, only actually getting both for two kids. Who were not Isaac. I've never had need of the freakin' portal before, I meet with and talk to their teachers without a portal, some of them even text regularly (though again, not Isaac's).

Jake is all melodrama all the time, lately. I'm trying to ascertain whether or not we need to pull him back out of school, and it's a weird situation with him - he got all As except for one B, and perfect attendance, for the first grading period. Girls like him, teachers like him, he has something he drew or wrote that he wants to show me almost every day. He brings home special treats and rewards for top behavior regularly. Buuuuuuut... he hates it. He desperately wants to stop going. He begs to be homeschooled again - daily. There are many mornings when he cries about going, and many afternoons when he calls from school asking to please, PLEASE be picked up early.

I'm torn between how Jake was the easiest kid in the world to homeschool and used his time well (meaning, he stayed at or above grade level in every subject with almost no effort from me, and then spent all the rest of his time drawing, writing, reading, building, and playing outside), so obviously I should bring him back home if he's that unhappy - and thinking he's doing SO WELL, has such a sweet and cool teacher, and was getting really lonely for friends, here. Also, he is very averse to almost all structured activities (bitching NONSTOP about GMYS til we pulled him out, years into that, even though he had friends and good teachers and his siblings have all also been in it, asking to please be allowed to stop things like Lego Club and Ceramics that he initially asked to sign up for...) and I always have this idea nagging at me that he has to be in SOME kind of structured SOMETHING...doesn't he? Why does he? Maybe he's just a certain kind of weirdo that it's ok to be. A smart, productive, charismatic little weirdo. I mean he is that, whether it's ok or not.

He's always been kind of moody. And it's definitely gotten worse as puberty looms in the distance (he's 9) - he really acts like my son, coming into our room to announce that he just doesn't understand what the purpose of life is, and that you grow up and you learn things and you do things but then you just die at the end so what's the point. Or, that he sometimes thinks maybe it would be better to just die so you don't have to worry about dying, and can see what happens after death.

The biggest complaint he has about school is that he "doesn't have any time to be creative" anymore. When you've got a 9 year old telling you that with tears dripping off his face, you pay attention. Or I do, anyway. He's kinda gutting me over here. FYI, our original agreement was that barring some kind of truly horrible situation, everyone was going to stay in school through Christmas break, when we would evaluate how it was working for everyone. Ananda, Aaron, and Isaac have no desire to leave school, which suits me fine, especially in the cases of Aaron (who was just a huge pita to force to do things and seems to respond much more easily to school structure and accountability) and Isaac (who really does a lot better being at school than he does being home too, in different ways related to his own anxiety, and ambition).

This morning -
Jake: Here, blow these bubbles while I do my homework.
Me: Why?
Jake: It's an ancient tradition.
Me: Well, alright then.

Yesterday Jake asked to go to a cemetery. Elise was psyched that there are REAL GRAVEYARDS and that's not just in movies. Isaac was yelling, "Can we really do that? Can we go right now? Is it far?" So I took them. They were ready with shoes on and out the door faster than I've ever seen them go.

At first they did math and pronounced ages reached, for awhile, looking at headstones. They thought a couple of things were creepy, and asked some funny/weird questions (If you lay down on the ground here do you just automatically die? If a car hits you while you're walking here, do they just bury you immediately? If your ride dies, are you stuck living at the cemetery forever?). Then Jake said that if I died there he'd take my phone and call Dad, they got really sad, Jake announced that he wants to be cremated whenever he dies, and that he never wants to think about me and Dad dying ever, and we left.

Elise loved it. She wrote a letter "to give her grandchildren" that (sort of, to her, almost phonetically) says, "I am dead. I had a good day while I was alive, but I had to move on, and now I am dead. -Elise" For her this is all just very intriguing stuff.

Elise is being homeschooled again. It's a long story I may or may not ever go into here, but for her school was truly horrible and the decision couldn't wait til Christmas break. She is SO HAPPY and it's really nifty to have her one on one, with everyone else at school. That's one reason why I hesitate to say, "yeah, Jake come on back home." She is very behind in some academic ways and was really struggling hard to exist in a 2nd grade classroom. There were things she liked about being there, but nothing she loved, and I have regrets about immersing her in an environment of strictly other 7 year olds...all of whom could read well and write much better than she can. She has some serious doubts about her own abilities and self consciousness about her own intelligence that just weren't ever there before, and probably didn't ever need to be. I could really go my whole life without ever listening to her talk about her Fs on tests, or cry about having to sign the Penalty Pad, again.

It's in my head so often, that Ananda didn't read until she was a whole year older than Elise is now. That never had to involve shame or failure or comparisons, for her. There is a whole schooling movement (Waldorf) based on not even beginning to teach kids to read until they're 7 (Elise's age).

We're doing a lot, at home, but the key is that we can do things that actually help her progress, now, instead of having to devote huge amounts of time to things that just go way way over her head. She can do 3rd-5th grade science and history and art, with 2nd grade math, and K and 1st language arts, and it all works, to move her forward.

We're also moving ahead with the round of private evaluations that were started over the summer. Not the sort she had as a baby or as a preschooler, but the learning disabilities and IQ and so on kinds that they don't do on kids younger than 7. She really enjoyed the parts of the evaluation process that she already experienced, so I hope that stays that way. Isaac always loved it when he was getting evaluated.

Tangential, back to Jake wanting to come home - I have hesitations about him having really given school a fair chance? But I don't even know exactly what that means, either. Or why he has to, or I'd force that issue, when it started out primarily as an experiment, and only because he wanted to try it. Parenting is hard. Sky is blue, water is wet, blah blah blah.

Elise talking to me CONSTANTLY all day every day, while everyone else is gone, is somewhat frazzling. I think it's good for her and one of several things she needs right now - to be able to engage and talk like that (having to sit quietly all day is really sort of the opposite of speech therapy...) It's just also a lot of talking. Did I emphasize "a lot"? I'm not sure you can understand. I'm actually strategizing ways to get her to hush for just a little while, sometimes - like today, when I brightly introduced the idea of audiobooks for car rides. WOULDN'T THAT BE GREAT?! LET'S GET SOME RIGHT NOW! O_O

She really wants to do schoolwork all day and into the evenings, and on the weekends. Her enthusiasm almost never wanes, so that is definitely in our favor. We have handwriting practice and books of number games, as well as a Reading Eggs login, for when she needs to work on her own for awhile and is tired of writing and drawing in her journal. But working with her is really FUN, for me, even though it can sometimes also be tedious as all hell. It's hard to explain, but she just tries so hard and makes so many different kinds of leaps and I do enjoy researching/buying/planning out curriculum materials SO MUCH MORE for the younger grades. I'm truly EXCITED, about the program we have put together for her here.

It is so validating and awesome, btw, how often A&A tell me, or their teachers tell me, how much MORE they know than other kids their age. They consistently wow people with their vocabularies, books they've read, history knowledge, science knowledge, general current event and government understanding, all of it. Other kids ask them to explain things regularly. Both of them have actually thanked me for always taking the time to answer questions and to explain things to them and just generally talk to them about anything and everything. It's pretty great.

Isaac is an A/B student who gets a ton of positive teacher comment codes in the margins next to his grades, on his report cards. Third grade was hard for him, but 4th was easy, and he's eating 5th up. He sometimes gets irritated by his Bs, but with as much school as he's missed this year already? I think As and Bs is incredible.


I'm so tired. I know I started this entry saying this. I know it's late. But I NEED the wind down time, once they're all sleeping, to breathe. Every minute today was cooking, or running to some errand, or teaching/explaining/coaching/asking, or carting people around - I got my shot, picked up prescriptions, went and bought more probiotics, finally got Elise's homeschooling form printed at Office Max (we're out of toner) and mailed, went by the younger kids' school (FOR NOTHING APPARENTLY), took Elise all through a botanical garden and to play at their splash pad, sat with her and worked, ran out this evening with Annie because she needs charcoal pencils and a kneaded (sp) eraser, medicated and sat up with Isaac - my head is just spinning. It never ever ends, and it's all (well mostly...) good stuff, but if I just lie down at the end of it I'm in for hours of tossing and turning. It's hard to let go of this quiet house and surrender, knowing that tomorrow starts early and will be just as relentless.

For whatever reason, I am also feeling pangs over the long lost feeling of nurslings, sling babies, and so on. Not really "baby rabies" feelings, though... it's all very specifically about my own babies gone by. Aaron nursing for an hour and a half at a time. Ananda only sleeping with her face on the "booby pillow." Wrapping my arms around Isaac in the kozy carrier, holding Jake close in the pool while he slept on my shoulder, Elise nursing under a blanket. I think the infinite mama part of me that has to spring eternal for everyone is really thinking it could use a heavy dose of prolactin to offset some of the more stressful moments.

On the (totally) other hand - I have SO MANY different kinds of moments, lately, when I stop and think about something that used to be the bane of my fucking life, and I just almost cannot believe I don't have to deal with it anymore. I don't know why so much of it has been happening, but geez is there a palpable sense of relief when it does. I recently visited a good friend with a new baby, and I have a few online friends who are pregnant, and here are a few of the things they remind me of that just make me think I am glad to say I've DONE MY TIME:
-everything to do with labor, OBs, birth, C-section, midwifery, maternity wards, and so on (picture me heaving a GIANT SIGH of relief, and then behind me a curtain opens and a combination fireworks display/dance party starts)
-pumping breastmilk (which for me is linked to the NICU)
-infants crying in carseats while driving
-the laundry avalanche of having two in cloth diapers while someone else is still wetting the bed
-getting head/face butted (and having a split lip, bloody nose, or just seeing stars...) when a baby/toddler threw their big disproportionate noggin at me...this is one of those things I'm not sure non-parents even know about. Like how I can stretch now, for years, anytime I want, because I am not pregnant. Stretching while pregnant is a recipe for charlie horse disaster.
-sleeping on a mattress on the floor because of co-sleepers/safety
-the struggle to get somebody to take a nap (HOW MANY CUMULATIVE MONTHS OF MY LIFE....)
-pulling teeth to make Aaron do homeschool work (this...this is cloud-parting kind of shit. It was important. It really seems like it was the right thing. BUT NOW THE RIGHT THING IS SOMETHING ELSE! Whaaaaaaaaaaaaaaaaaaaaaaaaaaaaat :D)

All in all I'd say the cuddling and kisses and oversized lap loungers I get now - all of whom use toilets and GO TO THEIR OWN BEDS at night, and every one of which can stay away from the street on their own in our front yard - are just about perfect for this stage of my life :) I like kids who can all do part of making dinner, and who each appreciate at least something that's happening on YouTube, and none of whom ever stand on the dining table. It's just a lot of intense, draining, rewarding, amazing, infuriating, affectionate, hilarious, terrifying, high stakes, entertaining, interesting, warm...

I suppose I could write adjectives all night, but I've got to go to bed.
altarflame: (deluge)
Today has been a pretty good, pretty chill day.

I had a dermatologist appt this morning, to look at a mole that suddenly became red, swollen and sore last week. It's gotten mostly better since I made the appt, and she suspects mosquito bite or zit, which is a somewhat exasperating relief (since my normal doc looked at it while I was getting my shot last week and said 90% chance it was infected, 10% skin cancer). I mean honestly. Dermatologist is really nice, though, and we did a whole "skin study" since I'm over 30 and have moles and freckles everywhere - basically that means I stripped, she looked at all my spots, said everything is fine and that I should come back in a couple of years. She has a licensed brand of products that I'm thinking of buying, like a glycolic acid cleanser that will supposedly stop my pimples from happening and a sunblock I wouldn't rather die that use regularly since it feels like almost nothing and smells nice. She could also zap all the little red dots off my arm in a $140 visit (out of pocket, since they aren't hurting anything). Stuff to think about, I guess.

I got exciting emails that Aaron passed his audition this past weekend and has been admitted to the arts charter school for dance, and Ananda passed and can choose from Visual Art or Instrumental (cello). She definitely wants Visual Art, and I don't have a community resource for her for that, like I do for cello, so Visual Art it is, and I guess we're about to have an adventure.

I also got an email that one of the camps some of them go to in the summer is going to be EVEN FURTHER away from our house than it usually is, BUT...there may be transportation! Like, a school bus picking them up right from our door! I almost can't imagine. This will completely transform MY summer :) Here's hoping.

We spent a lot of the afternoon and evening at my sister's apartment, Ananda talking with me and Laura, Aaron doing his schoolwork and the 3 younger kids playing with their cousins. It was nice time, albeit kinda hectic. Eight kids can start to feel like a lot in an apartment.

Grant was home when we got back, and in a complete roll reversal came out to meet us in the yard.

There is some peripheral tragedy that I keep coming back around to thoughtfully - one of my good friends regularly takes their kids to activities and classes at a community center that was shot up, with fatalities, over the weekend. And, my mother in law's best friend - whose husband just died of lung cancer a month ago - just had her brother kill himself on her porch. My mother in law spent the week down here trying to help her, right at the end with her husband in March. She's probably coming back down again, now.

I suppose it's a strange thought, but I always feel like it's such grossly inconsiderate assholery to kill yourself in ways that directly infringe on and traumatize other people. They have to deal with losing you, they shouldn't also have to discover and possibly clean up the area. This was also about money stress, which makes me want to go off on a tirade about our capitalist society, but I'll save it.


Mostly, it really is a happy day, and the peripheral things really are second and third degree periphery. In my little microcosm it's good news and good company, and I get to go rinse this mask off my face and watch shows with Grant, now.
altarflame: (deluge)
That's what my counselor said today, as a joke attempt, while I was in the middle of listing my current biggest "mom worries."

Annie is probably going to have oral surgery in the coming months, since her impacted canines are not coming down from braces (making space for them) alone. The surgery's not that big of a deal in and of itself, but, geez, general anesthesia? *sigh* For the most part, she's doing really great and I'm pretty much bursting with pride about her at all times. I was very impressed with her team captain skills and skating abilities at the scrimmage in Jacksonville last weekend, but I was just beside myself about her ability to make casual and graceful conversation with Nana, even when Nana's repeating herself, or being semi-delusional. The whole visit was wonderful and a big part of it was only possible because Ananda is somehow, miraculously, mature enough to take the silliness in stride and laugh with her about things that aren't even that funny. I wish I could convey just what I mean here... I just really would have cut her an awful lot of slack, if she'd been uncomfortable with the (Nana's in...) diaper jokes, or if she'd fumbled and stuttered when she got asked the same question for the third time, but I never had to. I think we all managed to have a good time that was very minimally weird, and made everyone feel glad it happened.

Aaron is on a temporary, experimental daily caffeine regimen that I hope might bridge the gap between "this is not sustainable" and "adderall." It seems important to add that this is something his pediatrician and my counselor, who is a licensed clinical psych, recommend as a great next step, along with some dietary alterations. I don't know where to begin, with the schoolwork battles and the all day every day nonsense...both of us are WAY too frustrated. I simultaneously want to throttle him and want him to not feel bad about himself, EVERY DAY. I took him with me to counseling today, and he sat in the waiting room doing his math, and then the two of us went to Galloway Farms Nursery for an hour. He liked it even more than I do, and found big areas I hadn't discovered on my own :) The only problem being that I clearly, completely screwed our first day caffeine "results" by isolating him in a small, quiet space for math and then taking him around a very serene place I knew he'd find ideal to the point of being a utopia. Ah, well. We need a bunch of days in a row to judge anyway, and I want to do as much else as I can to help him cope in general... He is still managing to be EVEN TALLER every freakin' week.

There is an arts magnet opening up that I've applied to for both of them. Annie with her first choice being beginning visual art, and her second advanced cello. Aaron with his first choice being advanced dance, and his second choice being beginning theater. We're taking it as it comes; IF they get in, we can decide whether they want to go, and whether that will be to the arts portion only or to the entire school day. I am cautiously optimistic about the program in general - it's a new location for a very highly reviewed and established main school, up the road. Like, HOLY SHIT the reviews are SO much better than ANYTHING else I've seen for schools locally. So far, we don't even have our audition dates, so, who knows.

Ananda is adamant that she won't go if they don't allow her purple hair. I already happen to know that they don't, on paper at least (Isaac's school claims not to allow all sorts of things that I see there all the time), but I am biding my time.

Isaac is having belly aches and bathroom troubles again :/ I've doubled his probiotics and am pushing water on him a lot, as well as trying to spend a lot of time in our before-bed-calm-reading-together routine - because it really seems like at least part of this is anxiety, like that is what's left of his lifelong belly troubles since we figured out his food stuff and things improved so much. It's hard not to get paranoid that things will rapidly progress to the terrible place he spent so long in before (hospitalization, tests galore, nonstop specialists, meds, etc). He's been doing very, very well belly-wise for almost two years now, so hopefully this will improve soon. I do have some things I can give him if it keeps up... For the most (non-belly) part, I continue to be in an amazed state of NOT worried about Isaac, which still sometimes seems new :)

Something weird that I think about sometimes is just how much Aaron and Isaac open up and act differently (calmer, more at ease, much easier to have a conversation with) when one on one. They seem to suffer much more than the other three for being part of a big family. It's hard for me to ever spend time alone with either of them, see how GREAT it is, and not ache a little for how much simpler, and really possibly happier, their lives would be if they were only children. I know you're "not supposed to say that," and it's not like I'd trade situations - even if I wanted to, two only children is not exactly possible :p - it's just strange to navigate, as a parent of all of them.

With Jake, I really just worry about him falling through the cracks. He's so easy and self-sufficient in so many ways. He does schoolwork very quickly and independently, and is ahead of grade level in pretty much everything with seemingly no effort. He is my least picky eater and the one who is quickest to go get himself something healthy when hungry. He's happy to play independently or with siblings most of the time, and is generally pretty chill. Now and then Isaac or Elise will come "telling" that he hit them or something, if they were play fighting and he got too rough, or if some trampoline-tag type play got out of hand - he does have a temper if someone hurts him first, even when it's an accident. And, he has a tendency to just beg to sleep with Grant and I, at bedtime :/ The combination (periodic aggression and the sleeping alone trouble) make me wonder if he's got some kind of repressed feelings happening, as he trudges along as "the easy one." There are times when he will just randomly tell me he's feeling really sad and doesn't know why. I try to get him to talk about it, and I try to preempt it, but fuck is it hard to always "get to" him in a meaningful way throughout the day when everyone else NEEDS things constantly and he SEEMS, in the moment, to usually be a-ok. I'm actually sitting here re-reading this paragraph right now and thinking dammit, I'm totally making a list right now of little things I HAVE to do with Jake in the coming days, and sticking to it....

Alright. I put a bunch of stuff in my (jam packed) phone calendar. They're small things, but it's meant as extras, beyond the normal "we have tea or dinner all together, and I hug him when he wakes up and tell him what to do with school work, and am around to show stuff to, and usually read to him and Elise together at night" kinds of things. Like having smoothies together while talking about our dreams/lack thereof tomorrow morning, having him help me bake the lemon syrup cake I have planned for Friday, and taking him over to the library for an hour Saturday afternoon.

I have him and Elise in the "lottery" for Isaac's school, for next year. He, Jake, at least, seems to really want to go, and I think it would probably be either a good or neutral thing for him at this point. Elise also wants to go, but I am not sure if she can really thrive in that environment, or not, re: various short term memory things I mentioned in previous entries... my counselor, hearing my descriptions of her issues and knowing her history, immediately suggested I take her in for a neuropsychological eval, at her old neuro practice within Miami Children's Hospital. That made so much clear and obvious sense that I felt irritated that her doc hadn't mentioned that possibility. I wonder if her doc has some kind of reasoning why it's not valuable or something? I mean she had a pretty thorough developmental evaluation during her preschool year (which showed her behind in speech but average or ahead in every other area, including things like comprehension), but testing before the age of 6 is a lot more limited. I called today, after counseling and Aaron time and arts charter applications and lunch, to get her in for that. The receptionist offered me an appt in the middle of July with what seemed like very little understanding of what I actually wanted to happen. Now, I'm waiting on a call back once she can fully explain to me exactly what she is scheduling Elise for. Because I am ok with waiting months for THE RIGHT THING, but...gah. I wish it were more possibly to actually get a doctor on the phone. Ever. Any kind of doctor. About anything. That is one thing I like about their ped - he actually does do that.

It is not outside the realm of possibility that I would have all five kids in school next year, which is a pretty bizarre and surreal concept. But I just don't feel capable of creating the sort of structure and consistency they need, a lot of the time :/ They all need such DIFFERENT things, and their doctors and orthodontist and dentist and extracurriculars, and my counselor and doctors and college and exercising, aaaaaall start to infringe on our school days, in various ways. And all of those things seem too important to just cast aside in the name of a peaceful and uninterrupted home school day. And I think there are trade-offs, and pros and cons, with everything, and that in a ton of ways, homeschool is still the better choice for them. In other ways, though, it's not. I think Jake REALLY needs friends, for instance - everyone else has a pretty solid group of friends that they get a lot out of, between their activities and PATH, etc. Jake really has siblings and cousins and that's it most of the time, though :/ Which is not as ok as it was a couple of years ago, and he's lonely.

Of course, the local schools are mostly ABYSMALLY TERRIBLE, very overcrowded, extremely crime-ridden, rife with language barriers...and so we are definitely at the mercy of charter school spot availability to even consider school as an option. And who knows how that will go. Earlier I had the ridiculous thought that maybe they'll all get in, they'll be doing well....aaaand then we'll have to move for Grant's job o_O

It would be really expensive, to put them in. We would deal, but there would probably be scrambling. When Isaac started 3rd grade and Elise started Kindergarten I was shocked by the prices of their mandated uniforms, and the crazy supply lists. They ask for tons of stuff "normal" public schools don't, it's a 40 item list from big class sets of tissues and many reams of copy paper, to thumb drives and ear buds for each child. He needed things like a spanish-english dictionary; colored pencils, markers, AND crayons; 10 different folders, all in different specific colors; and "at least 200" of those little loops for loom craft kits. They demand sneakers, and Isaac didn't even own them when he started (he had two colors of Crocs, and sandals, because Florida), and you feel like you need to buy your kid good sneakers to be in all day long every day, including PE. Back pack, lunch box, wtf - I spent over $500 for the two of them, all told. The uniforms being a big chunk of that.

I'm also still trying to figure out how to finance and budget all their normal summer activities, with the clock ticking for actually getting THOSE spots.

So yeah, that is a lot. It makes it really hard to care at all about shit like my own homework. Or writing. Which reminds me, my "review episode" recording, for Liz McMullen, is scheduled for the same time as Annie's next bout, and I need to try to move that. And since my editor is sending me another stack of copies, I should try to get that Tumblr contest going again. I don't have hours, you know? I've stolen this journal entry out of my sleep, partially in the hope that it will be easier to sleep once I say all of this.

I definitely have zero resources to expend any effort whatsoever on shit like polyamory (good lord, I'd be so thrilled to actually spend some time WITH GRANT sometime soon...). Once I got off the phone with the neuro office this afternoon, and we all had tea and talked on the deck, and I talked to the coordinator about this "Mythologically Speaking" PATH event they're all going to be in, it was time to take Elise to Girl Scouts and Annie to derby, and while we were out alone the boys and I got her things for the GS sleepover event Elise is doing soon (sleeping bag, raincoat, bug spray, new water bottle). And a few little birthday things for her (shorts, Rainbow Dash shirt, new sheets for her bed) that are stashed away, now. Then we picked her up, and we read, and I cooked, and Grant brought Annie home, and bleeeehh my eyes are seriously crossing.

Elise will be 7 on May 1. I have little chocolate stars for the top of her cake, and we're taking her to High Tea at a local place that does it in an absolutely over the top way she's REALLY EXCITED about, although she can't stop switching back and forth between the two dresses that are in the running for the event.

Annie turns 14 on June 1. She wanted a very low key birthday last year, which kinda makes me want to do something more significant this time around. Though I have no idea what that is, yet.
altarflame: (deluge)
I used my commute-from-school to talk, again. About our coming weekend, but also a lot of meandering thoughts about homeschooling teenagers - mine, and in general.



How perfect, with that recording in mind, that I got a text right before arriving, from Annie, that Aaron had just "stapled his finger." Aaron, who is now (bandaged*) outside, cleaning up all the garbage all over the deck because he accidentally knocked over the trash can, and bellowing in his cracking-cuz-it's-changing voice, "Whine! Whiiiiiine! COMPLAIN! WHINE AND COMPLAIN! Whine and complain a whole looooot so that you will reeeeeaally regret making me DO THIS!"

Ananda re-purpled her hair while I was out, for the bout this weekend. Because the purple she likes only comes with a bleaching kit, she has extra bleach. She explained this as Elise looked up at me with an exaggerated sad lip and her hands knotted together under her chin. So I have finally relented to let Annie bleach and make pink ONLY the bottom inch of Elise's hair (like how Annie had it when she was way younger, such that it can be trimmed off easily). They are ecstatic on the deck with some old towels, both waiting for it to be time for rinsing.

Elise's nails are also freshly-painted-by-Annie. Spoiled little Beast :) Annie had to wait SO LONG for a sister.

We realized the other day that Elise is about to turn 7, which is exactly as old as Annie was in Boston, when Elise was born.







Now Aaron is playing (really beautiful) piano. *deep, non-murdering-him breaths*

I will probably not be around online much until at least Tuesday, beyond the Tumblr robo-queue that's been loaded up for awhile. Possibly more like next Friday. So please don't think I'm just ignoring you if I don't reply to a comment for a week or something :)



*I suppose it's a good thing that he's had plenty of tetanus shots in the past couple of years. Often coupled with casts.
altarflame: (deluge)
Conversation at my breakfast table goes something like...

Aaron: This ain't no dramallama!
Ananda: This is an alpacalypse!

And my late night computer time is them behind me, bickering....

Ananda: Aaron, MOVE OUT OF THE WAY, how many times do I have to say "Excuse me," move -
Aaron: *giggling uncontrollably*
Ananda: I will crack all your knuckles and put salt in your bed.
Aaron: *dead serious* Annie don't say things like that.
Ananda: So move.
Aaron: She put salt in my bed once, Mom.
Ananda: I did not! When?
Aaron: That time you said, don't poke me one more time or I'll put salt in your bed, and then I poked you again!
Me: Seriously guys?
Ananda: JUST MOVE OUT OF THE WAY!

Just below is our current favorite video clip, which we found while looking at JAWS scenes after I told them how JAWS TERRIFIED ME as a 5 year old that spent every weekend out on boats in (periodically) shark infested waters. None of this crap where kids can be comforted, "werewolves aren't real honey." My Dad was like, "Well yes there are really terrifying great white sharks and their entire jaws really do come out of their mouths like that as they kill and eat and they really are around here sometimes, but quit worrying." <---paraphrased

Anyway, cinematic gold, particularly from :43 on:


I'm not sure if that's better or worse than the scene where the JAWS shark pulls the helicopter down out of the sky and eats it...

Aaaaanyway. I think Aaron has a shadow on his upper lip, where a mustache will soon appear O_o

He is devastated about this, hates everything about puberty (he views it as this terrible thing that ruined his relationship with Annie so now they can't share a room anymore and she thinks she needs "privacy"), and goes out of his way to make sure nobody ever sees the 3 hairs per armpit that he is now sporting.

He's also starting to get the hang of word problems, and is irritated that I keep telling him he's using too much filler in his essays. And, he's in extra rehearsals for his hip hop class because Tawanna's signed them up for a competition next month that one or more of us will be travelling with him for (just to Orlando). This one requires knee pads.

Because of my own reading about gluten and autoimmune disorders, and the GAPS diet, and how it's naturally led me to all the kids who are on gluten free diets to help manage their sensory issues - I've been thinking a lot about how he eats. He would live on honey bread and french toast if I facilitated that. As it is, he wants 90% carbs all day long. He sees me making huge dietary changes and going to too many doctors' appointments, so I explained all the research on leaky guts, bacterial imbalances, problems with the modern American diet, the genetic engineering of wheat, etc. Including how it's controversial, most doctors either don't know about or don't agree with this stuff for the most part, anecdata vs studies and eastern and western medicine blah blah blah. The upshot is he's on a "low gluten" transitional diet right now; he can have one gluten thing a day. This is what I did for a couple of weeks before I went gluten free and he seems pretty on board; he really wants to be have less of some of the challenges that seem to be getting worse, rather than better, lately (being confused too often, no short term memory, frustration that leads to depression....his blood work last year basically led us to the doc asking me, "do you think he's just depressed and it's manifesting physically", which is part of why he's dancing again...)

I keep contemplating the idea of whether or not he needs to be tested for ADHD and/or on some kind of meds, for his own peace and happiness. It's tricky because he's not in school and we find ways to work around his problems as a homeschooler. Parents who he spends weekends with for sleepovers and his dance teacher (or flute teachers over last summer, acting teacher last fall) always act surprised and disbelieving if I mention he has SID/SPD - even though they are also often obviously accommodating it in various ways (like how one PATH Mom realized after I pointed it out that she would call out goodbyes to other kids in a group but for Aaron she'd put her hands on his shoulders and look in his eyes because he didn't hear her otherwise). Our end-of-school-year evaluator and our pediatrician just look at me for all the answers about how he's doing and trust whatever I say. It's kind of a lot to try to assess and do right on my own! But Aaron loathes the idea of counseling and has a really hard time opening up to most adults, and I am not at all sure counseling would be helpful or effective in the way it was with, say, Isaac, who was super eager and enthusiastic to go and loved every minute. It has definitely NOT been helpful when our pediatrician (who we all love and Aaron has known for many years...) asks him questions directly about how he feels...Aaron basically goes into "give the right answer" mode, weirdly stiff and with nothing to do with how he truly feels or what he might actually think. When I ask him WHY later he says he doesn't know and he realizes it's "weird" - he did the same thing with his virtual school teachers, he'd basically put on this formal voice and go, "Oh yes...ok...mmhmm...absolutely," during their phone conversations, and then have no idea what he was supposed to do when he hung up O_O

There will be days or weeks where it seems nothing is unusual about him and I need to just relax - then he almost steps out in front of a speeding truck and Elise grabs his hand and tells him he has to look both ways and wait to cross. I still won't let him ride his bike anywhere but our street, our block by himself because I honestly think he'd get hit by a car in no time otherwise. He'll run into a trash can if he sees a butterfly or spots a spiderweb. Sometimes I think of how he's turning 12 in a couple of months and feel downright disturbed about how completely impossible it seems that he could be ready for independent living in 6 years.

He's so addicted to minecraft. Sometimes I think it's a good thing - if a kid is going to be addicted to a video game, that is probably the best one to choose - but other times I cannot deal with how he thinks his whole life should be a default state of playing with just special breaks to do other things (like eat, go to the bathroom, sleep). We have log in screens on his laptop and make him earn an hour at a time here and there and it's like his entire universe orbits around those times.




Ananda has finally landed herself on a roller derby team; the South Florida Junior Roller Derby (ages 8-16).


If you haven't been following, this started when she saw the movie Whip It the same week that we met a roller derby team at the Florence and the Machine concert last fall. I happened to find her some fitting, high quality derby-style skates at a yard sale cheap, a couple of months back, and she was using them just around the neighborhood. Then our friend Gloria had her birthday party at a local match, and I took a bunch of pics and video for Annie and got details about their junior league which she was awesomely, over the top excited about.





Her first practice was 2 hours of sweaty, red-faced, challenging demands (stopping completely and momentarily on one and on both knees; "T-stops;" attempting to block other players; trying to "jam" for the first time by lapping and getting around girls who want to stop her) - all among total strangers with people watching on the bleachers. With a mouth guard in. I figured she would either love it or tell me we were never, EVER going back, when it was over...and she loved it. And has been raving about it ever since :) The other girls on the team are SO nice, and outgoing, and did this "Circle of Awesome" thing after the practice where three of them went on and on about how well she did for it being her first day. She is really, really excited about this.

Such the renaissance girl, going from cello sectionals to derby practice :p

Still and all, those things both happen on Sundays and for a lot of the rest of the week (barring TLC and PATH on Tuesdays and Thursdays, and times when the little kids are in bed and she wants to try to stay up late with me) it's this constant ridiculous battle to get her out of her room. I know she's "approaching that age," but good grief. I thought I spent all my time behind a closed door because of extenuating, dysfunctional and unsafe circumstances; I didn't know it can just unfold this way because someone is getting older O_o She doesn't lock the door and Elise is coming in and out all the time since it's her room, too, so her stuff is all in there - and a lot of the time she's just reading a book or cleaning the whole place top to bottom, or drawing or doing her schoolwork. But...come on! Then I feel sort of pointless and self conscious when I drag her out and there's no obvious benefit to her being out at all. I often have to make it a thing - "let's cook something," or "come see this video I found" but like as soon as we're done...she goes back in her room. And then there are the 45 minute locked bathroom door times constantly happening (which was also so me).

I don't want to write too much more about Annie, particularly any concerns I have, because she's got friends who know I blog at this point and it becomes infringement on her life or something.

Ananda approved sharing: She went on a sleepover with her friend/our babysitter Izzy a couple of weekends ago, and it was interesting that I felt significantly more nervous about her being alone with another girl than I do about the normal giant coed TLC sleepovers - because those have constant guaranteed multiple adult presences, with someone calling me about any and every thing for an ok, whereas Izzy has freedom to basically do whatever she wants. She's a really good kid and I love her mother, but she's older (just turned 15) and I knew there would be a lot of judgement calls falling to Annie. It was kind of awesome - she wanted to recount every minute of the weekend to me when she got back. "We looked up a butter beer recipe and walked to Publix to get the stuff - that's only a couple of blocks and it's a great neighborhood in the afternoon, so I figured it would be ok. It was DELICIOUS, we NEED to make butter beer. And she wanted to watch this show Merlin together so we looked up info and it's just a BBC show - with HORRIBLE effects, it's hilarious - and it is AWESOME, we watched the whole first season and part of the second and now I want to show it to you so much. Angela made falafel for dinner and it was really good, and I kept thinking, 'why is Neil Gaiman in my falafel', so I had to show them that episode of Arthur that he appears in..." and on and on.




So. I had some pretty messed up first time experiences last week. Basically, I went to get my blood drawn at Quest, which was fine, and a non-event, last Tuesday. Then late that night, I started pulling off that ridiculous perma-glue medical spellotape... you know, the medical heplock/IV type tape that leaves residue for WEEKS sometimes no matter how you scrub? I don't know why I couldn't just have a band-aid, but I had the tape, so I was wincing and ripping it off and yeah, glue-y stuff all over me. And my inner elbow sticking together from it was so fucking triggering, I just...freaked out. I had the first real panic attack of my whole life. I was scrubbing the living hell out of my skin with desperation to get the shit off of me, which is of course IMPOSSIBLE. Instead I just look like this a week later:

It only lasted a minute and I was like, ok, get yourself together, take a deep breath, and I went and put on a tight long sleeved shirt so I just wouldn't be able to feel that or stick to myself or whatever...but at this point I was having chest pains. I've never had chest pains before, but I figured, whatever, I got all stupid-crazy-upset, they aren't CHEST PAINS chest pains (whatever that means). Grant went to bed, I tried to stretch and breathe and got on the computer to just veg out and distract myself...more chest pains.

I researched "PTSD and chest pains"...they kept happening.

Finally 20 or 30 minutes had passed and they kept coming in contraction-like waves, and my left arm started going numb and tingly and I was like...seriously? Seriously. I mean. WTH.
SO. Off I went with G to the ER feeling like an idiot. Chest pains the whole way there. Whole hand going numb. I was trying to reason with myself like, can you please just get a grip so we don't have to go to the hospital? I mean you realize you have PTSD FROM THE HOSPITAL?!

But they kept up. And of course the first thing they do when you go in with chest pains, is an ekg, which requires them to put little STICKY THINGS ALL OVER YOU. I felt emotionally calmed down at this point - I had ever since I put the shirt on - it was just irritating and a little worrying that the pains weren't stopping and at the point of the little sticky things, I started laughing a lot, because. Good grief, the irony.

So that night they were like, "the blood we just drew shows you have inflammation", and I was like "yeah I'm being seen about that", but my white count was also high that night - which is interesting, since I now know it WASN'T on the Quest blood work just hours before...I've since been told you can actually have an immune response to stress that bad.

They made me do a chest x-ray and then said I had costochondritis, which is basically visible and painful inflammation of the connective tissue of the chest wall. Something that can be caused by arthritis, and amplified by stress, in other words. They ordered me Ativan and Percoset and I was so tensed into a tight rock ball and tired of the pains in my chest and convinced I'd never sleep again when I went home that I actually took them both. Which was kind of awesome, except then when I was reading about Ativan the next day I was like Um, NOPE (anterograde amnesia? cognitive impairment that NEVER GOES AWAY??). They wanted to prescribe me a ton of them and have me start taking anti-anxiety meds - based on a single first time incident? I mean I would consider that if this sort of thing started being a regular deal, but I can't help but feel an ongoing prescription is jumping the gun a bit at this point? I was totally chill with them in the ER, just recounting high stress and complaining of lingering after effects... Also, since I've been back to the regular doctor and explained this incident she can't believe they would give me percoset (narcotics with tylenol) and not an anti-inflammatory (which would actually fix the problem and not just make me too stoned to notice it).

Anyway. This whole thing has caused me to do a lot of thinking about my own preconceived notions about mental illness (I don't want to have it), psychiatric medication (I've never thought I'd need it even in a one time situation sort of way), and the surrounding taboos (because in the week since, prior to writing this, I have really not told almost anyone about this). It's sobering (perhaps that's the wrong word choice...) to feel really out of control of yourself, or like meds would be awfully helpful in a given situation. It makes me realize that I can think/act as though I'm fine with other people in my life actually having events related to their diagnoses, and their prescriptions, but I still hold on to something faintly superior about not participating in any of that. Which is obviously shitty of me. So this is my silver lining moment: I now know what it feels like to have a panic attack and to welcome a pill to make the anxiety go away, and thus I will...hopefully...be a better friend/psych down the road as a result.

I'm also looking at my poor Isaac with his anxiety disorder and just wanting so much to help him NOT FEEL LIKE THAT. Gah. He is doing great overall, better than ever in life, but he still gets super anxious multiple times per day, and works himself into a panic a couple of times a week.

I have so much more to say about all of this, but it's just too late tonight.




I was thinking of how I read so much science and world news most days, and watch educational stuff with the kids and on my own, and hash out and debate things with Grant, and just...have no urge to blog about any of it. I like consuming and pondering issues, events, discoveries, theories...it's almost all I talk about a lot of days, in my real outside-the-computer life. But it feels really irrelevant to archive in a personal history, and like less of a priority to share since it's obviously already out there, and also I just don't have the energy for internet debates or even anything approaching debate-like-interactions. I hate that shit, when it's with anonymous strangers. But...I'd like more adults to talk to about adult things! As if I even have time for that...
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Ok. Isaac came home two nights ago - he's on a high fiber diet with lots of water and miralax, and probiotics, as well as taking a walk every day and having a follow-up (GI) appt scheduled. Yesterday, he stayed home and relaxed. Today, he had his first day of school.

I was happy with how the morning went - I got him up really early, so he could play on the computer and eat breakfast and feel relaxed before we went in. I walked him to class since it's his first day, and the teacher I met at the door acted happy to see him and concerned about how he's doing. They were really sweet and concerned about him being at the hospital. I explained that he might have to use the bathroom more than other students and reiterated that he has a reading disorder (something noted on paperwork I'd previously turned in).



I was worried about him, because I'm feeling really vulnerable about him right now, and protective, but also proud of him - walking into a brand new class for the first time on the third day, he was really brave and calm about it.

So then, at about 1:30, I got a call from one of the teachers (it's a combined 2nd/3rd grade class with two teachers). Basically, she was really nice, and said Isaac is very sweet and tries really hard but 3rd grade is an FCAT year and he's going to fail if he can't read, and thus be held back. She doesn't want his self esteem to suffer from that being his first experience of school. She suggested we take him back out and put him in next year, when it's not an FCAT year.

I can't help but have it screaming in my mind that schools and teachers are graded based on student performance and that weighs in, here.

I asked if she didn't think we could maybe get him reading by the end of the year, and she talked about how hard the test is and how after her years of experience, no. She said they could give him time on starfall and have him in "intervention" every day, but it wouldn't be good enough. She also said that even kids who have been in real school for years sometimes fail this test O_O

I told her I'd talk to his father, and his counselor, and him, and think about it.

So I went and got him, and he was SO EXCITED as he got in the van, literally jumping in yelling, "I'm SO GLAD I WENT TO SCHOOL!!!" and telling me all these stories. This is what I was hoping for, since he ADORED GMYS camp over the summer (and last summer). He really seems to thrive in structured environments with other adults and non-sibling kids in a big way, he eats it up...

The teachers and some kind of ESE specialist came over to the van, too, and had these sort of apologetic polite smiles, and dude. I don't get this, ok? I was being HYPER POLITE, and not hijacking in any way, and they were just being so bitchy to me! Like totally appalled that homeschoolers don't get graded, confused/accusatory about how he's passed previous grades, dismissive and scornful about one proposed solution I wanted to run by them (registering him as a second grader to give him extra time to catch up, since he wouldn't have to even change classes for that to work).

I left feeling really frustrated, with Isaac relatively unaware and just prattling on in the backseat nonstop about RECESS and the friend he made and how he loves it.

I didn't even have Isaac evaluated at the end of this school year, which is necessary for promotion within the legal homeschool guidelines, since I knew he was going into school. I tried to present that as a possible loophole for how they could say he really should be a 2nd grader - holding him back in advance, basically - but "The county" and "already registered" and appalled because apparently they had no idea homeschoolers just "Get evaluated" and they were talking over/not even hearing me, and ugh. UGH. I mean I wrote in and verbally told them he has a diagnosed reading disorder, so why is everyone acting so surprised now that he can't read???


I can tell they want him out of there. But I don't think, based on what I've seen so far, that that will impact the way they treat him, if he stays. Part of me thinks I can just sit Isaac down and explain that he might be in 3rd grade twice and he'll be fine with that - Isaac doesn't give a shit about grades anyway, as a crazy vagabond homeschooler :p Isn't part of the whole self esteem crushing shame thing how it's handled, treated and presented? I also feel like it's very possible he'll be reading pretty well by the end of the year and that's it's bullshit on their part to assume that's not something that could happen.

It's not like it wouldn't have an emotional impact to have went shopping for supplies and for uniforms and counted down for weeks and have a great first day, and then get pulled out, either. Fucking assholes. How can you pretty much say to me in one breath that you think homeschooling is questionable and homeschoolers don't learn much, AND THEN ALSO that he should be put back in homeschool? You have basically just told me you don't actually care about outcomes for my child at all, only your establishment.

I have some fear that I should be worried about them pulling him out of that class and sticking him in a special needs class...he's not actually learning disabled in general, is above average intelligence and fine in math, science, generalized social studies and history knowledge. He has a huge vocabulary and very impressive comprehension.

They want to see my documentation now, about his reading disorder, which I get but am not necessarily thrilled about since it's grouped in with a lot of other information I'm not eager to share with them, since it's a whole-person, emotional/personality/academic/etc assessment and Isaac has had some issues I don't think are any of their business. Like Grant's and my personal fears and suspicions about him are in those papers, and examples of disturbing stories Isaac made up.


Basically everything I don't like about public schools (learning/teaching for a test, institutionalized mindsets, weird prejudices against anyone who doesn't fit in, not being able to cater to individual kids' strengths and weaknesses, having to adhere to all kinds of protocol even when it isn't effective) is at work here, and so maybe I should just be like YOU SEE!! ...but it isn't that simple. Because I really think this would be very good for him - maybe great for him - right now, on many levels :/

I'm trying to decide what an email to his teacher should say, whether or not to go in early tomorrow and meet with them, and whether I should take this moment to seize onto a determination to do extra work with him every evening and weekend and get him into external tutoring (because I DO feel like I'm hitting a brick wall with him, myself, here)...

They get a ton of homeschoolers over there, I've known many who come from or go into that school. We aren't some kind of anomaly in that, and so I can't really figure out how we could have gotten off on the wrong foot such that I'd be getting attitudes. I came in and met with them about him being in the hospital earlier this week (which I would assume would earn us some extra sympathy or at least less rudeness? Hello?), he showed up in his uniform, before class started, with ALL the supplies (I carried in 4 bags aside from the lunchbox and backpack he had). I answered the phone right away when they called, talked to them at pick up and am referencing having had him assessed and in counseling - isn't all this the kind of thing teachers want/like/wish for, from parents? Or do they just wish for good test scores from naturally advanced students?

I'm thinking about this, more, I guess... I also really wonder if the "getting him registered as a 2nd grader," bit might be totally plausible if I push through it and do my own research. I mean it's only the first week of school - my older kids' "official," state-run virtual school classes don't even start until September 1.

Argh.

ETA: This is the vocabulary definitions Isaac brought home, that I'm supposed to study with him.


Have these teachers not even heard of tenses or conjugation O_o GOOD GRIEF!!
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My last week was characterized in many ways by our fridge being broken. It's kind of unreal what an upset to life it was. Financially, ugh, it was awful tossing hundreds of dollars in food in the trash (after a day of bizarre hodge podge "don't let things go to waste!!" eating) - and then buying by the meal for a family of 7 is so crazily expensive. I spent what I usually would on three weeks worth of groceries. Finally, going shopping today with it fixed, I was starting from scratch and had to spend way more than normal to replenish. My sister was absolutely wonderful despite having an (attachment parented) infant, an (intense) toddler and a (high needs) preschooler; she came over with everything necessary and helped cook us dinner one night, brought me $40 out of the blue another day because she unexpectedly won money from a scratch-off, and then today when we were talking about shopping on the phone she had me run by her house for her surplus carrots, celery, butter and olive oil...apparently shopping in bulk for a smaller, younger family yields "extra," a concept I'm unfamiliar with.

I still spent $705 at BJ's today...despite $50 worth of coupons...but we'll come to that later.

Logistically, I was going to the store 1-3 times per day, starting first thing in the morning before kids were up, as well as dealing with lovely side effects like the cooler I filled with ice leaking all over our dining room, and scrubbing out our fridge and freezer which STANK once they'd been sealed up room temperature for 2 days. There was also the 2 hour google-a-thon researching what we could do to fix it...because we really could not afford to call someone out, at all -

Which is partially because of things like how we had to have the van and the car at Goodyear TWICE EACH last month, and still the car has NO AC O_O - and we got a letter on the front door one day, saying the city had detected a huge spike in our water consumption due to a 3 gallon per minute leak on our side that we were responsible for both fixing, and paying for the inflated use bill they'd be sending us...that one was enough to send a cold chill down my spine. THREE GALLONS PER MINUTE? Luckily we have a plumber neighbor who helped us out...and luckily they know us at Goodyear and the biggest car repair bill...was able to be put on a payment plan. Suffice to say it is not a happy money time.

Grant is also working extreme hours, with his extreme commute, so for the most part I'm on my own with the kids. And, this week, the fridge.

Which is why I feel like some kind of awesome fucking ninja because I was able to diagnose our problem (pull-out bottom freezer was off track, leading to an insufficient seal when closed, causing the compressor to go crazy and freeze through all the pipes and tubes), do the initial experimental cure (get the fridge unplugged and then watch as, sure enough, copious amounts of gross water pooled under it over the next 24 hours), and then put the freezer back together properly so that it wouldn't happen again.

I do not normally stop to appreciate refrigeration unless we've just had a hurricane. And there is a possible one on the way - that would hit while my husband is out of the state for his job - and so I'm familiarizing myself with our shutters and lining up a mental list of people to call if I need help.

Anyway, I really appreciate my fridge right now. It seems especially luxurious, being sparkling clean on the inside and only filled with brand new things we really wanted in there.




I've been devoting a lot of mental energy, research, conversation, paperwork and calls/emails to the kids' educations for the coming year, too. I'm outsourcing more than I ever have before, but I feel really good about each of them getting stuff that's really tailored to their best interests. I also feel some level of relief that I'm not solely responsible for all of it, especially since the coming school year features my surgery.

Ananda - Staying homeschooled, but now with Marine Science, U.S. Government, Latin and guitar online via Florida Virtual Schools K-12 program, which is a pretty cool resource. She'll have teachers she's emailing and talking to on the phone and be responsible for turning in a certain amount of work per week, which for guitar will include audio and video recording. The science course has a lot of multimedia content, library reading and a field trip. She's using Grant's guitar for this. We're sticking with Kumon math, since she loves it, and will be focusing most of language arts on book reports and analyses, since she reads constantly. She was able to audition into GMYS's Young Mozarts during camp this summer, so I'm trying to figure out some wild way to get a freakin' cello of her own now (they're only provided by GMYS during the preparatory classes and beginner camps). There are some rent to own programs in the area that might work...sort of...since I'm gonna make them. I'm also making her take long walks and bike rides with me often because she can get really, reeeeally sedentary if I let her. I'm on the lookout for a PE program for her, actually, much to her dismay.

Aaron - Staying homeschooled, but doing Earth Science, U.S. Government, latin and (standard 6th grade) math online via Virtual School. I've been stocking him up throughout the summer with reading he likes, so he can do more writing for me based off of it - Aaron hates fiction but loves poetry, comics and general nonfiction. Right now he has a lot of new Shel Silverstein and Calvin and Hobbes, a thick stack of National Geographic back issues, and a few other odd things (like the Book of Useful Information). He's been promised science experiments and will be auditioning for Young Sousas and Concert Band with GMYS later this month, on flute. He also wants to take their new percussion prep class, and we're still up in the air about him dancing. I'm planning to make him utilize his camera and YouTube account, as well, in several different ways.

Isaac is going to third grade at a local charter school. He's extremely happy to have been placed in a combined 2nd and 3rd grade class with his friend Naja (Kristin's daughter), and one of their two teachers comes very well recommended (don't know the other one). He's going to keep playing violin with GMYS, and is supposed to start counseling again in October (grant funding/rotating sessions and breaks thing...).

Jake is doing 1st grade at home. He's very academically advanced and really creative with his time, and so at 6 I don't plan on doing a ton of structured stuff with him. We have some new BrainQuest and Kumon books we'll work through together, and we'll talk and go out places and all the things we always do. I am trying to get him into martial arts; he does NOT want to do music anymore, and is really eager to do that instead. I've found a place funded by the Children's Trust, which kind of blows my mind - they fund GMYS, and the Institute where Isaac's been evaluated and gotten counseling, AND this? If my books ever get big and I am rolling in cash, they're gonna get a whole lot of it. These martial arts classes still cost money, but it's extremely reasonable.

Elise is attending Kindergarten at the same school as Isaac (and our friends Darrien and Naja, and some of our neighbors, and some of her preschool class...) - it's until 2 instead of 3 like normal school. I wish they offered a half day option, but as it is they do have a lot of early release days throughout the year that are half days (I think I counted 16 on the calendar?). She's also going to start ballet through - GET THIS - a free local outreach of the Thomas Armour Youth Ballet, i.e. the MIAMI CONSERVATORY, like, how is this free and local? The Miami Conservatory is extremely prestigious! And, up in Miami! Anyway, Kristin found out about this and Naj has been going and loving it. Elise has been talking whimsically about ballet for 6 months now, mostly just because it's pretty, and I'm sure she'll have fun. She's also sticking with violin and will be going to those weekly prep classes with Isaac now that she's 5 (she's in beginner GMYS camp with Isaac and Jake right now and doing really well, though she's been home sick mostly cuddling with me and Annie, nursing and reading books for the past two days due to some feverish illness she caught there).

I'm doing my last semester at Miami Dade College this fall, graduating in December. And, we're gonna be continuing with TLC and PATH. We are probably starting the ball rolling to move sometime soon, but it's gonna be a slow rolling ball that involves decisions about selling the house, actually selling a house in this market, finding a new place, etc...I don't expect this to be upon us before New Years at the very earliest, if then. Surgery in the Spring, and I'm applying to UM and FIU to start in the fall of 2013.




Ananda and Aaron and I sat around the dining table for an hour or so the other night, talking about personality. How so much of it is innate - I was cracking them up with examples of how each of the kids in this family is still so much like they were as an infant, and they were filling me on an episode of Radiolab they listened to with Grant on dna in pregnancy and personality formation - how they think it's really interesting, how exposure to radiation changes your dna and can, thus, change your personality.

I was telling them how after I got out of the hospital last, I couldn't shake the feeling that I was "different." That I thought and felt differently about many things than I had before, far beyond PTSD symptoms. It's harder for me to concentrate now, and yet I have to concentrate much more to accomplish things that didn't use to require focus. My belief systems are different, partially because the whole experience left me questioning everything, down to my identity and the purpose of my life.

There came a point when I started researching sepsis and brain damage, and found tons and tons of information because that is a real thing - an infection travelling through your blood stream means there are a bunch of dangerous bacterium flowing through your brain and trying to take over, just like every other part of your body. Apparently many people have much worse trouble than I do with this; I mean I can still wonder about it, research it, understand what's going on and then make a relevant blog post.

These things are hard to quantify, obviously - we're all getting older and growing and changing as people all the time. But life - not aspects of it, LIFE - feels different to me, now. Since then.

I was telling the kids how I remember very clearly how satisfied and fulfilled I was by cooking big breakfasts and lunches, baking for tea and changing and washing diapers, reading to everyone and sitting by the bathtub while kids played. But I don't feel satisfied and fulfilled that way, anymore. I feel bored out of my mind in the house a lot of the time, restless and angsty, or I get really frustrated with my inability to create structure from thin air without accountability and just waste hours and hours for weeks unless I force myself into some kind of outside-the-house thing. It isn't depression; I'm very happy out of the house doing things and sometimes I'm having a good time, here, too - sometimes a really great time, but...my joy comes from different places, now.

Sepsis brain damage, that's a big thing to consider or take on, I mean...ok...maybe being forced to stop having kids, or maybe my existing kids getting bigger, or maybe so much time doing the same things until it was wearisome, or even having a lot of my autonomy as a mother threatened and taken away (through enforced separation, the inability to lift, etc) have altered my perceptions. Maybe it's all these things!

But Ananda and Aaron knew exactly what I was talking about and thought it made an awful lot of sense. Which is a little sad, and makes me stop and ponder how TERRIBLY TRAGIC and awful it would seem to "old me," that new me is...different. But new me, being different, is pretty ok with the change.

Grant nodded like it wasn't even a surprise as we talked about this, saying "Yeah you're a totally different person," as though that's just very obvious.


Sometimes, here on Livejournal, I worry that I'm going to be disappointing or at least disillusioning to my long term readers - I feel like an imposter in certain ways. But, it is what it is.


I have tons more to say, but my eyes are nearly crossing from tiredness AND my sister has completely distracted me via facebook chat :p
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Ananda and I went out shopping for a dress for her, for the PATH end of year dance that's tomorrow night. This dance is a plot hatched by moms partially just to give them all the experience of hating/standing around at a dance, which is sort of a quintessential teenage experience (we even hired a dj that's gonna make them LINE DANCE!!), but it's backfired - as I type Annie is spending the night with Izzy and Mia and her curling iron and a lot of nail polish and excitement and so on.

Izzy's house is AWESOME, btw, like wut. It's a tiny place in an overgrown tropical sort of lot on the outskirts of the gables, all jalacy windows and every floor, wall, and built-in shelf made of different sorts of wood. You have to step over the boat that they're refinishing, as you come in the front door, and her mom is a painter and her work is all over the house, and they have a freakin' house ferret running around on the floor, and skulls on the kitchen counter, and steps either up or down for every single room, and Ananda was thrilled.

ANYWAY, we went shopping for a dress for her, remember that part? We found one at Goodwill for $6. Fits amazingly - though I had to shorten the straps - and she loves it. She is adamant that she's wearing her Converse with it, and my mother and husband assure me I have no room to complain since I tortured everyone by pairing all my own dresses with combat boots as a teenager.

The dress is blue velvet with a shiny purple edging, and straps, and it's pretty modest and age appropriate - goes up past the tops of boobs and down to the tops of knees and isn't tight on the butt or anything...but...she's just so beautiful and she's some kind of WOMAN in it.

All these PATH boys used to seeing her in baggy tie dyed tshirts, I dunno, I think it's gonna be like Hermione at the Yule Ball for them.





It makes me REALLY happy for her, that she can actually enjoy dressing up and get excited about it. There are so many things that were this huge big deal for her, a couple of years ago, that are just not even issues at all, anymore.




I had the feedback session with Isaac's psych evaluator, FINALLY, late this afternoon.

It made me sad - to hear his synposes of things Grant and I were concerned about, and Laura in her packet of paperwork, and to learn the somewhat disturbing question-answers and short stories Isaac came up with during the sessions, and to sit and ponder the lengthy list of recommendations.

I also sat and felt good, though, that Isaac is happier and doing better right now than he ever has before, by a long shot, and is still only just 8 years old.

Actual diagnoses, right now, are:

-high-average and above average intelligence, respectively, based on two different tests
-reading disorder
-at and above grade level math skils
-anxiety disorder, NOS
-borderline clinical childhood depression - this had to be administered orally since Isaac can't read, which, owing to how self conscious and guarded he can be, most likely skewed the results to "less depressed" based on the moderate answers he would give out loud

Other observations include:
-uncomfortable in social situations
-gastrointestinal discomfort (needs more medical research)
-very unusually self-conscious and guarded
-articulate and verbose
-lack of empathy

It's a whole lot and it's also nothing, since none of it exactly surprises me.

I really like Isaac's therapist, and this evaluator guy is ok, but I have had an ongoing tense conversation with both of them about homeschooling. They are so quick to say, "Isaac needs to go to school," and you know what? I think Isaac probably needs to go to school. Isaac is currently #3 on the waiting list for a 3rd grade spot, this fall, at a local charter. However, the counselor and psychologist are basing their opinions on horseshit - it's a knee-jerk reaction wherein they go, "Hmm, kid's acting weird - oh, he's homeschooled. Homeschooling is weird. Probably that's not helpin'!" I would like to know when the last time was that anyone at their institute recommended that a kid be taken out of school, or suspected school was the problem.

One example of this ridiculous attitude they have is that both of them have said multiple times that Isaac has to have opportunities to get out of the house and to socialize with peers, over and over. EACH AND EVERY SINGLE TIME this comes up, I say, "well you know Isaac does have a couple of hours at a library doing indoor play with one group of kids every Tuesday afternoon, and 3-4 hours every Thursday at a park playing outside with another group of kids, and he is in violin classes every Friday. He's going to a music day camp this summer at the same place where his classes are, and where he had day camp last summer." EACH AND EVERY SINGLE TIME, they go oh! That's awesome then. Cool, keep up the good work. But then without fail the Homeschooling Issue comes back up again, and they say it again - well, he really needs to be socialized, he really needs to get out of the house and see other kids. And I repeat myself and they stand corrected. I mean, wtf?

Likewise they act as though he doesn't read because he's homeschooled. I bring up the fact that I've got a severely dyslexic daughter, a boy with SID, and a 6 year old and they're all reading really freakin' well. I talk about how I have a lot more time and energy to devote to Isaac learning to read than a teacher of an entire class would, and how I spend a lot of time just reading TO him to preserve his love of books, and can step back and give him time when he is too stressed about it, and they have nothing to say, except some vague crap about how he could be in classes for kids with special needs - because, oh yeah, above average intelligence kids do GREAT in public school LD classes <----ugh. Just ugh. They go on about this critical point of early intervention that we can never get back and it's like, how does me sticking him in school all day where they're gonna devote a tiny portion to GROUP reading stuff equal "tackling this head on" whereas me painstakingly working with him one on one and trying different approaches and getting him software he enjoys, etc, does not? It's just stupid, to say it like that, to have that close minded attitude. They don't think his advanced math skills are because of being homeschooled or that my other kids' outgoing personalities are because of being homeschooled. They just stared at me when I asked if they realized that all over this country people are paying thousands of dollars a year to enroll their kids in waldorf schools that preach that you should not even BEGIN to teach boys to read until they're 7 or 8 years old.

Anyway, as I said, I would like to put Isaac in school - for reasons like, he is really manipulative and has a scary amount of influence on and lack of empathy for Jake, and so homeschooling is magnifying that situation in ways I fear are not healthy. I also think it's unfair for Isaac to spend so much time around siblings that have stigmatized him as various annoying caricatures of himself. He also tends to thrive on more structure than I am good at being consistent with.

But I can't have a real conversation with these mental health professionals about my concerns that Isaac will fall FURTHER behind in language arts and/or miss out on really valuable enriching homeschooling activities we partake in with PATH, or be left out of our group dynamic in another way when he already is the odd one out in so many ways, etc - because they're too busy parroting this "oh homeschooling's a variable let's pare this down to the status quo" bs around. I can't expect their help evaluating the pros and cons, at all.

Additionally, they're both really big on this "You (meaning I) can't do everything, it's too much" stuff. They say it over me, they interrupt me to say it because just the fact that I have FIVE KIDS is so overwhelming to their mindsets, and homeschooling is just an avalanche of holy shit we have to save this poor woman before she drowns. Fernando in particular will lay a hand on my knee and say, "Tina, it's too much. You have to be able to get a break, too." I can tell he means this very sincerely as someone who works at a place that emphasizes the whole family of each child, and he wants to give me some relief.

But, how do they presume to know what is a burden to me? Picking up and dropping off Elise at specific times, along with forcing her out of bed early and trying to get her in bed on time, and finding her clean preschool tshirts, and dealing with all the colds and flus she's brought home and the time she got lice and the nickle and dime expenses and special activities we have to come in for - all of that has been way, WAY more work for me this year than just having Elise at home those three hours on weekdays would have been. Like, by a landslide. I think just getting her physical and her medical exemption and her county forms in order were probably more trouble than just having her home would have been. Likewise, forcing Isaac to go to school when nobody else has to and arranging that drop off and pick up around our homeschooling activities and dealing with homework in the evenings when we're eating dinner sounds like a NIGHTMARE lot of work to me - sitting down with him with workbooks and activities when we're here in the afternoons, and curling up on the couch with books together and bringing him along to plays and beach days and PE class we're all doing, sounds EASY AS HELL.

I feel like I can honestly open myself to the possibility of school for him, and of what is truly beneficial. I just don't think they can.




Speaking of "how badly I need a break," I had one badass lot of great weekend. I wrote about our beach day (Sunday) already, but Memorial Day was also amazing. Highlights:

-really good sex followed by collapsing into a two hour nap.
-standing around with a glass of wine on my christmas-light strung deck, talking with kids and cats on the trampoline, feeling blessed in the night
-eating amazing - I'm talkin' AMAZING - steak and shrooms Grant grilled. There are not words for this steak, people, I'm serious. I was freaking out.
-talking and laughing and watching Antiques Roadshow and drinking an awful lot of wine, with Shaun and my kids (they had lemonade).
-great bubble bath with Grant, and even better sex

HOW DO I MANAGE?!

It was interesting but worth it, sitting around in biology with what I believe to have been my first hangover, this morning. At least I had the van today.

May 2017

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