altarflame: (deluge)
I talked to my Dad on the phone for the first time in awhile, tonight. It was good, and terrible, and...really fucking awful.

I just don't understand how my parents have painted themselves into such corners, and are falling apart to such a degree. It makes me sad for them, and sad that they aren't available to my kids as grandparents, and terrified that I don't want to ever be in the sort of positions they are :/

I don't know how you can just not consider going back to school or trying out a different industry, year after miserable struggling year, not eventually think to prioritize dental care as things deteriorate, not even contemplate counseling as decades pass and you get more and more muddled up and avoidant about all sorts of things.

My Dad has got approximately 4 teeth left. He's worried that he feels sick a lot of the time partially from decayed pieces of teeth gone by, that are still in his gums. He's embarrassed. He doesn't have any insurance - health or dental - and he lives paycheck to paycheck in a way that's very dependent on tourist (and hurricane) season. He's viciously dreading Obamacare because he works as an independent contractor - and hasn't filed taxes in over 10 years.

My Dad is only 53, guys. His arthritis is terrible, and he's never had any treatment or meds for it aside from self medicating (he was diagnosed at 20), and...oh God I just don't even know how to deal with it. He's living in near isolation and sees no light at the end of the tunnel. He absolutely will not accept help of any kind from me, either - even right after we got the settlement when I tried to gift him with something he'd wanted for a long time, he refused, and to this day if I mention ANYTHING the kids need or that costs more than I expected during our conversations, he says, "Aren't you glad you didn't spend that money on me?" :x

He is still him, with all these visible and invisible issues, and he wants to tell me hilarious stories that really make me laugh, and he sounds like he sounded when I was little - meaning, strong. Invincible. Really, really smart.

There are good things, my Dad has a few things - he lives on a canal his boat is parked in, so he can take it out whenever he wants and he gets a lot out of that. That sounds really glamorous, ok, but anyone can have an old, used boat in the keys and the canals are NOT glamorous where he is. I mean he literally has a 700 square foot duplex he's in with his girlfriend, and a car that breaks down parked out front, and lives on a canal with a boat, just like everybody else in the neighborhood. He's a mechanic and works on it himself. I'm just saying, it makes me happy that there are a few ways in which he is still living his life. He really seems to enjoy his job, too, which is kinda perfect for him.

He just also has this shame, about being broke (regardless of what I say about how I could give a shit less how much money anyone has) and his health, and the brokeness and the health also truly limit his options, and so we almost never see him :/ I feel like he is the person who taught me to advocate for myself, whether in fighting my way through the financial aid office and appeals process to go back to school or hunting down resources for my kids...but the whole concept of him advocating for himself seems too foreign. He truly acts like I just don't get it, and/or am living in a dream world, when I suggest options or avenues for him to improve any aspect of his life. It's so heavy, to think of what it must feel like to be really sad about all sorts of things that you've also just given up on ever improving.


My mother was recently diagnosed with Chronic Obstructive Pulmonary Disease (COPD), i.e., the precursor to emphysema. This explains her quarterly ER trips for bronchitis, and her need for albuterol (as a non-asthmatic person) to always be nearby, and has in no way slowed down her smoking. It's an interesting combo, to go with the Transient Ischemic Attacks (TIA)s, or pre/mini strokes, she's had several times in the last few years. She does not exercise in even minor ways, and barely eats food. Really - one small meal or two snacks in a day feel like a lot, to her.

My mother is 49, ya'll. She's the age many of my kids' friends' parents are - and my kids' friends parents are vibrantly healthy people who take vacations, join yoga classes, knit things, have social lives and/or church communities...my mom lives in this teeny tiny place, in a crime ridden yet rural area, with a car always on the verge of breaking down. She has this night shift security job she's struggled by with for the past 5 or more years, where there is no opportunity for advancement. She reads the Twilight books over, and over, and OVER in a way that is probably not ok.


When I was growing up, my various houses (we moved...a lot) could be pretty terrible, but my grandparents were all very good, and actively engaged grandparents. My Dad's parents had some health issues at times, and didn't work, but they lived on their own, had enough money to get us (small) birthday and Christmas presents and leave $20 bills under our pillow if we lost a tooth while we were visiting overnight. They left baggies full of quarters around "from the Easter Bunny." They came along on Disney World trips, when I was little. They cooked us delicious meals and read us stories, when we stayed with them for weeks at a time. Took us in their above ground pool and on their riding lawn mower. We crouched in their windows at dawn with them, watching for deer and rabbits. I have nothing but good memories.

My mother's mom and stepdad (her "real" dad was the "pirate" - read, "international drug smuggler" I'm descended from), who were married from before my birth, both worked full-time until about 5 years ago. They always provided huge Christmas Eve celebrations for the family, including my own children for quite awhile. Laura and I spent every weekend there, as little kids, and weeks of the summer later on. When my mom checked out, that was where each of us ended up living for our high school years. I was driving Nana's car when I learned to drive, on the weekends, and they got me my own phone line and just...

I heard all kinds of stories, from my parents, about how their parents were shitty when they were young. Inconsistent, borderline neglectful, functioning alcoholics, broke as hell, etc etc. What I inferred as the natural order of things, is that people may be kinda derelict, as young parents, but then they get it together enough to take care of themselves, and pick up the grandkid slack, at some point in middle age. This seemed to be the way of the world, a pattern that could be counted on. My various stepdads and their parents seemed to follow this same trend - adults who played too many video games, smoked too much weed, got fired a lot...and their parents, older people who owned homes others could go back to in times of need, and never yelled at children who came over, despite the terrible abuse of yore that would be referenced at times. A need to size up in bras, or to get braces or have wisdom teeth pulled, was something taken to grandparents for review, when I was a kid.


The point is, my parents have not held up their end of this bargain at all. They eagerly accepted the help from their own parents, and talked shit about how their parents had sucked back in the day, and then they just kept on being total derelicts with no self-awareness, once we were grown. I mean. Do you know what I mean?

Grant's parents are not in much better shape, healthwise, though they are engaged grandparents and fully realized human beings - by which I mean, they have friends, and interests, and hobbies, and are living their lives. "Opa" provided half a house for us to live in for 5 years, too, allowing me to stay home with babies and toddlers while Grant built his resume, which is (beyond WAY above and beyond) priceless and lovely and I will never be able to adequately thank him for it. Oma has always been a great place to visit, a sure call and card on birthdays, she stayed with them all while we went out of town to Maryland in August. More importantly, since those kids needed them so much more, they have full on RAISED my sister in law's kids from day 1 of their lives - which has often been an awful lot of very complicated work.

So, I don't mean it as any reflection on their characters, when I say that it is still so scary and awful, what poor health they're in, and how totally without financial resources they are :/ My mother in law has a degenerative bone condition that causes chronic pain and a gradual loss of mobility. She and her husband have also been utterly financially devastated by him getting cancer, losing his business as a result, etc. They're in such a vulnerable position...my father in law has untreated back issues that nobody knew were debilitating him to the degree they apparently have been for a decade, until very recently. The amazing government job he had for a long long time, is no more.

Both of them, like my parents, have moved hundreds of miles away in recent years, and so are not at all easy to help out. There is also a scary, fast-forward effect, wherein more times passes between visits and thus their aging seems to happen in rapid fits and starts since they've moved. Grant and I have rarely gotten used to how old any of them looked the LAST visit, before we're seeing them again and it's progressed...

His parents are early 50s, too. It makes me wonder if maybe that's just how it is - time, and our bodies gradually falling apart.


My sister is really angry about how uninvolved our father is with our children. She remembers how great HIS dad was with us, and wants that for our kids. I get it, I really do, and I also think about it sometimes - but I don't feel mad at him. I feel like our kids (Laura's and mine) are in a totally different situation than she and I were, and NEED external relatives so, so much less. WE read to our own kids, and look at animals together, and take them swimming ourselves, and buy them their bras and their braces...they're safe, at home. They would love him, and they do love him, when he's around, but. Their lives are full, either way. Likewise with how my mother beats herself up semi-annually and vows in a passionate way to be more involved as a grandmother. I just kinda smile and nod. It's not something I'm very invested in. They don't really notice her coming and going.

My anger towards the both of them is more like, "WHAT THE FRESH HELL IS YOU FOOL'S PLAN, for 10 years down the line when you're utterly incapacitated? You're just gonna leave it in my hands, to either take your care on full time or put you in some state run, Medicare type home somewhere? Drink some water, put on some supportive shoes and go for a walk, and start repairing your credit, you assholes!"

That is partially me railing at mortality, and inevitability, as I am wont to do. Mom, Dad and the Grim Reaper all collectively piss me off.

I don't want them to die. Even more than that, I don't want them tottering around suffering and decrepit for long, torturous decades that are not much of a life.


I have these beacons, these inspirations that I look to as role models (and for hope).

Nancy is one. 65, travelling, attending births, speaking at conferences, working on her next book. She gets up every single day and walks or swims for 30 minutes. She has a great haircut, can laugh at Louis CK and is always searching for new music. Her clothes are mostly from Etsy. She really listens, when people talk. Nancy's bringing her mother (who lives alone, drives, etc) to our house for Thanksgiving.

Our pediatrician is another. He's 70, and spends every summer in South America doing charity work and care for brain injured kids. He moves with purpose and energy but stops and takes his very patient time with everyone who comes to see him. He and his wife have adopted over a dozen special needs kids over the years. His jeans are ripped up and he has a long rat tail and the embossed wooden sign hanging out in the strip mall outside his office says, "Dr Spiderman." I was actually shocked to learn his age just a couple of months ago, after going to him for many years and several kids, and then thought, oh yeah. Liver spots on the hands. Around his eyes. I can see it.

I think about my Cuban great grandmother, my Abuela, jogging around the island each morning into her 90s.


I am very aware of how much I'd like to age well - meaning, with tears and laughter but not bitterness or denial, without too much loss of mobility, with introspection and honesty. I would choose pain over loss of cognition, given the choice (which nobody is). Financial security, at least enough to cover essentials like my Nana and Pa have, would be nice.

One thing my "pirate" grandfather had that I think is enviable, is a quick death following a life lived just as he wanted it to be. The man drank all his waking hours, slept on couches (and boats) all over town, told jokes, collected stories, had affairs, got high, hung out with his dog and so forth literally until the night before his liver quit and then he spent a few unconscious hours puking up blood, and died without waking up.

My Nana, by contrast, my poor Nana, following surgery gone wrong, has been wearing diapers and struggling to discern reality from hallucinations for 4 years now, as people spoon feed her in the bed she can't get out of :/ I love her, but she can't stand to have us around and I can't help but wonder at times whether she would have wanted it this way, if she'd had a choice (which nobody does).

Both of them were, I believe, 62 years old - his death, her strokes. It was the same year. They were only 15, when my mother was born. My mother's stepdad, my Pa since I was born, is 80 and caring for Nana. He's starting to fall apart, now, but it's very recent and obviously somewhat related to the enormous burden of her care. All throughout his 60s and early 70s he was walking, dreaming, doing yard work, telling old stories, planning and executing their vacations. He took us out to see hot air balloons take off at dawn, and drug us to hot, bright, dusty things I didn't care too much about (rodeos, air shows with the Blue Angels) that were still better that NOT seeing things or going places. The world has always been very big to him, since he traveled all over it for most of his life before he married my Nana as a retiree and started a kind of second life.

I suppose the lesson to take from every really vital and with it old person I could aspire to be like is, MOVE YOUR BODY AROUND. Every day. Get out of the chair, up off the couch, etc. Keep learning, yes, and keep feeling and communicating, but also keep moving. It's mandatory.


It is so past my bedtime.
altarflame: (chalk)
This was a really calm and peaceful day which is something I needed a lot.

I slept in, spent a long time on the phone with my Dad. He detailed the pirate memorial they staged with my grandfather's ashes, on his boat down near Key West today. It included things like pouring beer and corn flakes into the water, playing a soundtrack including "Free Bird", "Knocking on Heaven's Door", "Ride Captain Ride" and a lot of Bob Marley. He believes my mother did do some real letting go and that it's what Grandpa would have wanted.

I think my Dad's pretty great. He even took a bunch of napkins out there in a ziploc to hand over when my mother started crying. There was also a (lighthearted) wake-style story-telling session that involved much laughter.

I also found out my "three century man" (as named by the Key West newspaper) great (great-great?) uncle is 114 this year O_O He lives in his own house, the one he was BORN IN, IN 1897, and he drives himself to the store once a week. Apparently we don't know him better because he's "a mean old conch". The only other detail I got is that the first three fingers of both of his hands are stained orange from camel no-filters.

I swept, mopped, vaccumed, watered plants, led the kids in all kinds of chores. My house is feeling like a nice good place to be again. I am really appreciating it immensely lately - the individual spaces that are each so good as well as the amount of space over all.

We did a lot of schoolwork. Aaron is starting on fractions and reviewing graphs and he actually did his work with no trouble today. Did you read that? I still almost can't believe it. He's also got a YouTube account through me, that he's eager to work on, and sits with me and reads about the latest in the nuclear crisis in Japan every day. Annie made sense of number lines and adding decimals. She's nearly done with the last Lord of the Rings book and is reading Artemis Fowl as a "breather" because it's less challenging. Isaac worked on filling in ending consonants, and we talked about sperm and eggs and babies. Jake worked on sorting and matching and more clocks/time. He floored me this morning saying things about how four numbers mean thousands and three numbers mean hundreds - I didn't know he knew that. It came about because my scale does "pounds point partial extra ounces" and he saw the ".6" at the end as a fourth digit and went "YOU WEIGH A THOUSAND POUNDS?!" Elise did pre-handwriting (tracing, coloring), and cooking with me in the kitchen.

Our Dover Sampler for this week came with tons of cool astronomy things I saved to print for reading and coloring. Annie is already psyched, she's on a huge astronomy kick lately.

I also realized today I need to make them Easter baskets and got kind of excited about that.

They make me really happy. I found out Fairchild Farm has a summer (day) camp with scholarships available through the Children's Trust and am applying for the three older kids (it's for 6-10 year olds).

I made chicken and yellow rice for dinner, traded texts with David, read a choose-your-own-adventure robot book with Jake and a lot of Shel Silverstein poems to Aaron, and started a new Anne Rice book. Blood Canticle. I am beyond excited because this one is actually BY LESTAT AS HIMSELF IN FIRST PERSON AGAIN and already in the first 5 pages reads faster and better than the whole entirety of Blackwood Farm ever was.

I'm gonna start the Oz books with the little kids tomorrow night.


I'm at a bit of a frustrated stand still with writing as my files and stored links are mostly on laptops that are being repaired (by Grant, who is very busy). I decided I tonight that I just have to quit waiting for that and work around it as best I can for now, which there are some ways to do.

Also a standstill I've made peace with, with college, as my financial aid has still not gone through but neither has anyone elses' and the "pay by" deadline has been extended universally so getting my appeal processed is not as much of an emergent issue.

Weight loss is not going well. I am sticking with my thyroid/metabolism/energy/kill my yeast support regimen (coconut oil, B-12, probiotics and no or low mercury fish daily), keeping what I eat reasonable and better than normal although not at Eat To Live standards, really, and trying to excercise, but, uh. My stupid ass shin splints that I got in NY last summer still act up really badly if I walk quickly or for long, particularly in the shin attached to the ankle I sprained? So what is that about? I mean walking is supposed to be my fail safe excercise as a person who medically can't do ANYTHING to strain my abs even peripherally (straining to open a jar strains them peripherally, it's ridiculous)...the shin pain gradually amplifies to "debilitating". I think I'm going to try stretching a lot before I leave and wearing my expensive NY New Balance sneakers...because, yeah, I'm an idiot and try to just walk in flip flops like I ALWAYS HAVE THE WHOLE REST OF MY LIFE before I was a super fat person with a bad ankle and shin problems due to the aforementioned time in non-supportive shoes... Those $80 sneakers have really just sat in my closet ever since I got back home many months ago... Now that my nose piercing is totally healed and infection-free I'm going to go back to the Y for swimming again, too.

Grant and I are scarily strained at times, though still seeking each other for comfort. I realized today that though we're counting down for Easter, Elise's birthday, and Ananda and Aaron's birthdays, and planning things for them all the time, we both completely forgot our anniversary is coming up (again) - and sooner than any of that other stuff. Not sure what if anything will be planned...finances could really be better at the moment. On the one hand, we could maybe benefit from some shared one on one that was positive. On the other hand, we've been getting an awful lot of shared one on one time that does not end up positive lately :/ I'm trying to focus on things we both know we're really good at together...for instance, we could stay at a hotel overnight somewhere just a couple of hours away and even if all we do is watch movies, swim in the pool and eat something delicious, hey, that could be worse, right?


I'm hoping to post a bunch of pictures tomorrow.




This is my favorite Shel Silverstein poem:

Rain

I opened my eyes
And looked up at the rain,
And it dripped in my head
And flowed into my brain,
And all that I hear as I lie in my bed
Is the slishity-slosh of the rain in my head.

I step very softly,
I walk very slow,
I can't do a handstand--
I might overflow,
So pardon the wild crazy thing I just said--
I'm just not the same since there's rain in my head.




I saw this awhile back and LOVE. IT. I don't normally like Ted Talks. At all. But this is different, profound and fundamental and I really think it's worth your time to watch.

altarflame: (Alice)
I'm in a somewhat disconnected, dissociated state all the time lately. Because my Grandpa (mom's bio dad) died three weeks ago and I took her to see his body while she was completely broken down and grieving hard. And my Nana (her bio mom) is in the hospital now, with brain damage. She - my mother - is at the bedside 24/7 and it's wearing her down. Nana is in the ICU, the swelling in her brain just won't quit, she is continuously calling her cat from the bed and saying she's in Pennsylvania (they're in central Florida) and alternating between laughing at how she can't formulate a sentence...and getting really frustrated that she can't express herself, and that something is wrong with her. My mom has to leave when they do physical therapy because she cries the whole time from the pain. Nana's house was my only permanent home growing up, Nana was the boss at the warehouse where I did most of my teenage employment time, Nana is only 61 and is missing work right now, and probably won't ever be able to go back...

And, my Pa (Dad's bio dad) has now been airlifted to Baptist Kendall (here, in Miami) for a heart attack...from Key West...I've been to see him, and I've talked with him on the phone, and Laura is going and we're trying to take him food. All day everyday Laura and I wait for the phone to ring. Nana updates. Pa updates. Mom updates. My Dad is a wreck, he channels his vulnerability into anger and so when I say, "But if they can't give him blood thinners with the ulcer...how will they do the triple bypass?" he explodes, "I don't fucking know, Tina!"

He's 77. Pa. And he is so small now, still the thick head of jet black hair because come on, he's Cuban, but jeeeeeeeeeez the bones. Still saying "I love you Dahlin, you don't have to stay long" and trying to serve me his ice water and make sure I can hear the tv, like he's hosting me in his freaking room in the cardiac ward. I start to wonder horrible ethical questions like whether or not they're feeling very urgent about keeping a 77 year old alive anyway.

Death and life and time passing is this very tangible thing around here lately...I look at Grant with his toothache and his aches and pains and I think of our parents with their complications and...I don't know. I just don't know.

I have these crystal clear moments of raw emotion when I cry the whole day's worth of tears in 10 minutes and pray very fervently. Then I slip back, again.


I'm trying to step back and enjoy my very young, very healthy, very oblivious children, particularly the youngest and healthiest and most miraculous, who is just turning two...we've thrown together a party on short notice and I'm up at this hour baking and cleaning after the kids and I tackled the deck and yard and walls and toilets and things all day...and hit the store for food supplies...and I am happy. And Elise is so excited about having a birthday, she flips when we talk about it.

...And I feel guilty. I know my Mom needs me in Lakeland. I know my Dad is stuck in Key West and expects me to be with Pa more often. I know I'm planning a big celebration in the midst of all this crap, the ICU just keeps rolling 24/7 while we pick out candles and craft supplies and blah blah blah. All day long I have this hum in the back of my mind of needing to make phone calls, at war with this more surface level dread of any more phone calls.

I'm glad I have Annie and Aaron to get goosebumps with, and just FREAK OUT about the Half Blood Prince trailers on the Apple website (GO SEE THEM...seriously), and my amazing good friends to distract and invite and vent with me. I went to pick up an organic produce share from my friend Kristin, who runs a co-op and had extra, and we ended up talking about her life and her issues, which have nothing to do with death or loss of identity or crushing hospital obligation bullshit. Just all the kids playing and her chickens and my chickens and her stand mixer is lime green. And she has normal stuff, LIVE life stuff, issues that don't imply any sort of impermanence...We have a lot of good people coming over here tomorrow, for the party, too.

My husband sends me emails in the middle of his workday telling me how looking up the Sarah Mclachlan lyrics to "Answer" make him think of us. "I love you dearly" as the subject. Then he comes home and uses boiling water on the nasty floors and let's each kid run and leap into his arms in turn. They form a line :)

Just pulling in the parking lot of Baptist makes my mind slip further, and further, and further back. It's like what I do right before surgery - "I'm not really here. I'm completely calm. No feelings."

I have pictures to share...

The chicks are growing up.


And this is what I did with some of that giant flat of fresh picked strawberries we had...that filling is strawberries that have been cut up and soaking in sugar for 2 days as I stir, add more, and repeat. Chocolate buttercream. Om nom nom.


Cheeseless pizza for my dairy free, allergy free lifestyle...the picture does not do it justice. I was upset when I saw it, but ENRAPTURED WHEN I TASTED IT. What does Professor Snape say about potions to that first year class? "Bewitch the mind, ensnare the senses..." yeah, that was this pizza. But really.

It's puttanesca sauce, thin sliced vine ripe tomato, and chopped kalamata olives on the bottom. Then olive oil and salt roasted red peppers, zuccinni and mushrooms, whole black olives, squeezes of lemon juice, and seasoned salt on the whole thing. Thin whole wheat crust. HOLY CRAP JUST TRUST ME AND DO THIS.

A and A having ice cream cake at the Earthday thing we went to, which was also a birthday party. Earthday is my birthday, sponsored by Whole Foods, because my friends manage crap like that.

All the free watered down carrot juice we could drink ;)

And my office...nowhere NEAR DONE, not even painted after months of "we need to..." but how I love it anyway.

My taste in lamps, much like my taste in beds, runs towards "sex den".

I am going to make a ripple blanket for Isaac out of all this, and it's just what he wants. I would never normally have these colors anywhere in my possession, and so I'm practically drinking all the pretty yarn in the yarn bag, everyday...


You see where my color choices for my normal projects tend to go...

Messy desk with roses from my love. All phone calls are better taken that way, btw.

And A and A come to me to show me this "museum" they built.

I really, really wish I had made captions for this the minute they showed it to me, because to hear them narrate what each and every one of those exhibits is (including the cryogenic chamber in the middle) was pretty damned astounding.

While crafting this entry I've also baked two round cakes, 28 large cupcakes and a dozen mini cupcakes. All carrot. And realized, as I tend to when I start quantifying, just how much goodness I have and how lucky I am and how thankful I ought to be.

Also awesome - being able to call my sister up and make her watch this on the phone with me and have us all laugh hysterically. Because somewhere in the middle of all this hysteria there has got to be some laughter.
(MAJOR LANGUAGE WARNINGS, I just don't care about language...love it.)
http://www.youtube.com/watch?v=fQuibqQj0hM (blast it all ,embedding is disabled)
altarflame: (Alice)
Aaron's cat, Peter, is still acting as though he just got back from 'Nam around everyone in the house - leaping from a litter box amidst a fine spray and diving under furniture as soon as anyone enters the room, and so on. Except with Aaron, of course, who he nuzzles and loves on and purrs loudly with. The other night I peeked in his room and Peter was in some kind of state, I could hear him purring from the hallway and he was acting like he wanted to fuse himself to Aaron's shoulder and face. He was laughing and scratching him and said, "Look Mom! Peter's in love with me! He wants to marry me, and make millions and millions of little cumans!" Oh, Aaron.

So. This has been Surreal Week for the Walker family. I have been having extreme dizziness from antihistamine withdrawal (OF ALL THINGS), Grant is in Tooth Pain Hell, and so both of us are largely useless as my mother calls with updates every few hours because my Nana is in the hospital. She had aneurysm (sp?) surgery a few weeks ago, and it seemed to go very well. We sent flowers and called her and it seemed all good. But it turns out that some thing they did wrong in there was blocking an artery from supplying blood to her kidneys. Two weeks of undiagnosed kidney failure later...and we're dealing with all kinds of horrible effects. She's in the ICU, with my poor mother who is still horribly grieving for her Dad that JUST DIED two weeks ago (her parents are/were only 61 years old here...) Nana has significant neurological damage from swelling around her brain from excess fluid buildup while her kidneys weren't working. She can't move one leg, can't see well, and doesn't know what year it is...this is my Nana who I lived with throughout high school, who we go to be with every year for Christmas Eve, who has a full time job and takes vacations...who's husband that is still fit and active is 18 years older than her.

As I've sat in my office with the room spinning, trying to avoid standing, trying not to dwell, trying to help Grant feel better with heating pads and liquid tylenol and chewable Motrin because he can't take pills and hot tea and distractions of every womanly sort that can be mustered when one feels that they're falling down while just sitting there...I've been doing a lot of browsing around online.

And I've found some awesome stuff! For instance. Alexander McQueen, who I think rocks, has designed some clothes for Beth Ditto. Who is fat. And unashamed of it. And beautiful anyway, in a way that SHOULDN'T BE SO SHOCKING. Like...ok. I am not someone who thinks all fat is good fat or that it's awesome to be huge, I understand there are real health risks and it's important not to forget that. But, I also know that you can take two people and feed them both the same thing every day, and one will get fat while the other stays thin. And I know that a large proportion of Americans are overweight, and yet we continue to idolize EXTREME thinness as the only thing fit to be displayed in any arena, and eating disorders and our young girls and blah blah blah. So anyway this singer who has so many cool things to say has nude magazine covers, she has spandex costumes for onstage, she says that growing up her mom and grandmother would tell her not to wear a bikini but SHE never thought she shouldn't wear a bikini. She thought she wanted to wear a bikini. She thought it was just her body and not so different from a lot of other bodies and what the heck was the big deal that the mere sight of her could offend?
Cut cuz there are four fairly large pics here, including some non-graphic nudity )

Even though I am not really into nudity on magazine covers in general...I can't help but think how AMAZING it would be if there were more like THAT in the grocery store checkout lines. How different all the ladies might feel as they checked out. I mean, wtf, there are guys that like this. This is what was being painted as the pinnacle of beauty for, oh, THOUSANDS OF YEARS. Why do we try to program everyone to think only one thing is beautiful now?

I am also really hoping my kids join forces and buy me this for Mother's Day:


Browsing through it on Amazon is an ethereal experience.


It is really horrible to imagine my Nana permanently mentally impaired. I know so much about neuroplasticity because of all the lay reading I did when Elise was born, and I have some hope, but she has a lot of strikes against her...age, sedentary lifestyle, lack of enthusiasm for new/challenging activities. Still and all the word is that she is in a fighting mood and they'll be starting physical therapy. *sigh*

Aside from being freaked out that my grandparents suddenly appear to be dropping like flies just because I love THEM in their own rights (my Dad's dad has also recently been hospitalized, and I've been talking with him as well...) it's also terrifying to me to feel as though there is some buffer being removed that protects MY parents. Like...once my parents' parents are gone...they're next.

*sigh again*

I set up a flickr account to chronicle my stolen images, btw. I doubt I'll be posting them all here. I'm just altarflame there, too, like most everywhere.

I'm also doing incredibly well with super healthy eating, and feeling good about that...I'm sure I'll expound soon, probably with pictures of weird and wonderful things like cheeseless pizza.

Lastly, Elise's 2nd birthday is May 1. And I am very excited about it. How many THOUSANDS OF TIMES have the Boston peds' words rung through my head? We'll know more in a year - we'll know A LOT MORE in two years, that is huge... And the first, oh, five thousand of them, two years seemed impossible to wait for. "One day at a time", like being boiled in oil to wait and to see what would happen. I am ready to celebrate this miracle child.
altarflame: (Time is coming for me.)
This evening I made a big old wok of stir fry vegetables (terriyaki), a big pot of chickpea noodle soup, and a yellow cake with chocolate buttercream frosting and some of my strawberry filling. All from scratch, all good. And a lot of 10 minute boil in bag brown rice to go with the stir fry.




Every time I closed my eyes to go to sleep last night, I saw my Grandpa's dead body in the funeral home. I cried a lot in the funeral home. I'm still not completely sure why; it was some combination of having known him in life and seeing his dead body, being near a dead body in general, and the overwhelming pain and grief my mother was feeling. Basically I was standing in an emotional tidal wave and there was no way not to get sucked under.

This is the third time I've been near a dead person. It always unsettles me terribly.

It's just so fucking intensely obvious that it is not the person anymore. SO MUCH of how a face looks, is the personality that animates it - even in sleep, even in a coma. I really don't understand how anyone could see a dead body and not know that souls exist. What was there...is gone. What is left...is something else. Vacant, and decomposing.

So those first few hours in bed, I had all these cyclical, exponential thoughts. Round and round, wider and wider...
That is going to happen to me one day - all this flesh on me will be just a carcass.
It's going to happen to everyone I know or ever see.
Everything is so temporary, so changeable, we are all gradually falling apart physically.
Sometimes, people go into the hospital and don't come back out.
Sometimes, there is something going wrong inside your body and you have no idea until it's too late.
It's going to be our parents, before we know it - mine and Laura's, Grant's and Frank's.
Not just that Grandpa died, but my Mom and Dad and Teresa have all been in the hospital for serious things now, in these past years.
My Nana!
When I was in the ICU, I had such a thick and solid wall up, blocking out my emotions, that nothing I perceived can be trusted. But it seemed, it really seemed as though everything was trying to fade to black, as though that's all there would be, if I let go - just black.
Could it really actually be possible that Grandpa is in Hell?
Could it really actually be possible that Grandpa is in Heaven?
I was so afraid of my parents going to hell as a 6 year old in Baptist school.
Everything is so temporary, my mother refusing to come to church where I was getting baptised, my mother getting baptised in a church, my mother in the My Dad years, the Jud years, the (golden) Todd years. My mother now thin and fragile and different, no boundaries, but looking like her old self for just an hour before she left.
Except skinny like she was 17 and in my baby pictures.
I say these things, these wild hyperbole over the top things to joke like I'm so old, but they're ACTUALLY TRUE:
-The bridge I drove over all the time in my remembered childhood is rusted railings falling into the sea and 9 foot trees coming up through the asphalt
-my baby videos are silent flickering things converted from old reels
What will my Dad have left to live for, if his Dad dies? He drives a cab, he lives with Madie, and he takes care of his Dad. That is the important part.
My daughter will be 9 so soon.
My baby will be 2 so soon.
My brother was my 2 year old baby.

It was a long time getting to sleep full of intense dreams.




Grant is still sick. We have been talking a lot about all of this. And I ran a lot of errands with Ananda today - Publix, post office, CVS for a picture print, PetCo for hay and litter.

God feels so real to me. Not just real...always real. He seems so CLOSE. I keep praying and having the sense of turning to yell to someone and finding myself nose to nose with them, and being like...oh. And adjusting my volume. It's how I felt in Boston, and at camp. I spent an hour on the phone with my Dad today. And my mom called 3 times. I pray Mother Teresa's prayer; Speak with my mouth, touch with my hands. I don't know how to explain what I mean except that I FELT my prayers working, in the funeral parlor, I felt my mother's pain and I felt how she needed it and I felt it working. Not taking the pain away. Just the sharpest corners, the roughest edges, making it something she could wade through somehow. Holding her up. There are all these little things I start to want to do - to eat crap when I'm not hungry, to slack off when I shouldn't, to give in to little temptations of all kinds, but it's easy...easy to not do them. It's annoying how easy it is, because I want to be more tempted and do them and like them. But it's just so clear that I'm not supposed to, and don't need it. That it isn't what I'm really looking for. And then the words and tones are right there, to say these things to my mother and to my father that are so hard to say, so harsh to say, that need to be said, and then I'm in some state of curious surprise that I didn't offend anyone because I wasn't offensive.

I guess this is kind of cryptic. But it's amazing. I feel so calm, but calm in this very humble, very raw way that has to do with deep connection and faith in surreal times.

I do hope that I sleep better tonight.
altarflame: (Time is coming for me.)
I'm thinking of writing one. To be read on the boat where they scatter his ashes to the sea. I will not be there, but everyone seems to think somebody should write something somebody could read. And I know it would mean a lot to my mom.

He had so many adventures. The man

-played the flute
-spoke Jamaican patois
-cooked authentic soul, jerk, cuban and other foods
-cut hair on a professional level
-left his country club family to be with my Nana-from-the-wrong-side-of-the-tracks
-claimed to have deep conversations with God

among about a billion other things.

The story he told most often was about my mother being born premature, and how small she was in his hands. His 15 year old hands.

I can understand being from somewhere like Quaker country (York, Pennsylvania) and falling in love with Key West.


His body (I can't really think of it as "him") looked horrible to me in the funeral parlor. And that impacted my mom really badly, especially along with the director there's talk of all the cleaning up and prepping they had to do because of how gruesome his ending went down. But our next stop was his sister's house, and she gave my mom a pic off the fridge of him sitting up on the side of a dock, grinning and giving the camera a thumbs up. He'd gotten a charitable (i.e., free) laser surgery on his cataracts and had went from legally blind to all but 20/20 with no glasses overnight, and everybody down there talked about what a new lease on life it was for him.

Digging things up for my mother (his fanny pack, for instance...) around the island was like touring the cast of characters from Big Fish or something. Raging drunks whooping it up and offending my mother for celebrating his life that way, high people weeping and sobbing, and then the honest quiet ones who have good and bad to say but are sad that he's gone. They're actually keeping "his" seat in the Half Shell raw bar reserved until they can make a plaque to hang over it? The man spent a lot of time in the damn bar, what can you do.

I don't even know.

Third time on the rock in like 2 months, for me. I feel like a kid again, like I'm supposed to be down there all the time now the way I used to. I was sitting on someone's white picket back patio, with their teeny tiny peat rock yard and all these shady tropical trees and shrubs overgrown everywhere hanging over all these close spaced tall white picket fences, and the sound of some totally srtanger's raging party 10 feet away and the humidity heavy in the air, thinking...just how deep that microcosm has implanted itself in me. How familiar it is, street performers and homeless people and RICH RICH people, only in flip flops, and almost everyone you see just visiting but the locals easy to spot. Blinding bright bouganvillia and loose wild roosters all over the place. As many rented mopeds, golf carts, bicycles and streetcars crowding the little roads as regular vehicles. I don't even know how to say what I mean. But I drive up and down that new 7 mile bridge running parallel to the one my Dad drove me up and down as a kid - every single weekend - and the old one is impossibly narrow, gone in places with the rusted railings falling into that marbled, vibrant ocean and trees - big real TREES - growing up through the asphalt from salt water and I just think...time. What the hell, man. Time.

I was definitely born there.
altarflame: (Default)
My biological maternal grandpa - my mother's birth father, that is - I call him Grandpa.

He's never been a big part of my life, and when he has it's been pretty negative.

But he always meant a whole lot to my mother, which I tried to understand. It was not always easy. He could be very demanding of her and take advantage a lot and then insult her to death...I got in some screaming arguments with him for the way he was treating her in her own house, after she drove hours to get him because the cops were after him or some nonsense, as a teenager.

He lived on houseboats most of the time, off the coast of Key West. He did a lot of really small time international drug running. I could never talk about this when he was alive because he was wanted under multiple names in multiple places. We had "grand jury detectives", whatever the hell that means, come to our apartment when I was in middle school and serve my mother a subpoena to appear in court - she was offered the witness protection program if she'd turn him in. But she never would. We had a childhood dog once named after him - "Alias". I visited him in jail in the upper Keys when I was about 11. He went to jail with my x-x-stepdad (not Todd, the one before him) in Jamaica and they ate chicken backs (scraps bones, almost starving) and peed in buckets and slept on the floor for months. My mother would call and ask to talk to "the white man" and they'd bring back either her boyfriend or her dad because those were the only white men in the jail. They'd been on a run together. They came home rail-thin, heavily bearded, with scurvy. Scurvy! I always said he was a pirate.

There were times when my sister and I would get our own hotel rooms in fancy places in Key West, when he'd just gotten back from somewhere, and for a week we'd be eating every breakfast at Denny's and spending every evening in a hot tub. And plenty of times when he was homeless for too long between runs and ended up crashing at our place, sometimes leading shady characters to our door.

He died today. He was 60. It was some kind of sudden thing with vomiting blood that led to rapid detorioration - it hasn't even been properly figured out and diagnosed yet. They couldn't keep transfusing him fast enough.

I haven't talked to him in years, and liked that just fine, because he was mean and spiteful and honestly just all around wack. He drank beer all day every day and smelled horrible and used to wake up on our couch and act like my brother was a deck hand - "Swab, get me my cornflakes" (a beer). Beer my mom was buying for him when we were on food stamps. The last I heard he was talking a lot of shit about my "illegitimate children", who's names he couldn't even get right.

*sigh*

But, my mom. My mom was kind of all he had, because he really drove people away from him...and he had driven her away, finally, this past year or so. They hadn't talked in months, she'd neglected to call in January for his birthday and also at Christmas. Both of which are huge things for them to miss. But he didn't care that Elise was in trouble, didn't care that I was in trouble, caused problems for her and Todd and then also didn't care that she needed help when she was getting divorced, after all the years of her helping him. So she finally was like, yeah, I won't call you anymore then. Basically.

She tried to drive down and see him before he was gone, when she got the call. She didn't make it. She stopped here, in Homestead, and I spent the evening at my sister's house, trying to cheer her up, feel her out, help her somehow. She was numb, we got her to smile and chuckle some because we are always "on" around her, performing. Lots of hugs. It's strange because she knows neither of us cares personally about Grandpa. But we both care a lot that she's upset. And especially just coming out of a divorce, already skinny and strained from stress, to lose her father. She was a total daddy's girl. She didn't get to reconcile, or see him alive one last time. I called Grandpa's sister for her, to urge them to please wait to cremate him until my mother can see his body. Which is really important to her.

My sister says she was a wreck before I arrived. Which I can understand. But I was honestly surprised it wasn't worse...she wasn't shaking much, was walking around a little, was drinking tea, when I arrived. It wasn't what I was afraid of. She says, "Wait until tomorrow" ominously, because tomorrow, she's going down to Key West. I'm taking her to church first. And hoping that it helps. Strange ressurection Sunday, for sure...

I called my Dad, to talk about this. He drives a cab in Key West. He is not in direct contact with my mother and hasn't been for a long, long time, but they hear about each other through Laura and I. Anyway, my Dad, he was like, "WHAT? I gave him a ride 2 days ago! Damn!" and so on. It turns out my Dad's been giving him a lot of rides. And so he can testify that Grandpa had an actual apartment for over a month, a girlfriend who was pretty nice, and was hanging out at bars and doing coke and up to all of his old tricks right up til the end. Trying to get my Dad to deal for him out of the cab, my dad refusing cuz he doesn't want to lose his license. Which I conveyed to my mother and hope can be comforting in some sort of dysfunctional way. I think I'm going to end up interrogating my father for more, because it seems through some odd twist of fate that it's the only way she'll find anything out about the past year of her dad's life. My parents only talk TO each other if I'm hospitalized and they accidentally end up in my room at the same time.

I would appreciate prayers for my mom...she's at a pretty tough point in life. Beaten down really hard. Her mom, my Nana, just had a major surgery 2 weeks ago that she traveled to Lakeland to be with her through. And that came right at the end of this horrible mess with her marriage ending in the worst convoluted betraying way. She's ended up living with her brother and his wife, working as a waitress because the economy in Titusville is so bad, driving this old piece of crap she hates.

So all this is dominating my thoughts in a big way tonight. Since about 6pm or so when it started for me.

It's strange, you know, there have been so many points in the past few years for us, watching and waiting while someone is in the hospital. My mother herself, Isaac, Elise, me, my Dad, my Nana. And you sit there with this baited breath and refuse to think the unthinkable. It's crazy that it really happens. That sometimes...you don't get better.

My mom is looking at my weird protruding belly and BEGGING me to get it fixed before it is an emergency :x

ETA BECAUSE I FEEL GUILTY - Positive Things About my Late Grandpa
-he was really great at sailing
-and cooking
-and cutting hair
-and sometimes told a really, really hilarious story
-there was some wisdom mixed up in his non-judgemental way of thinking that I could probably learn from
-he was really into appreciating the little things and realizing how much more we have - even "poor as hell" in America - than people in 3rd world countries have
-there was not a predjudiced bone in his body, he was actually probably my only totally non-racist relative growing up
-he had a peace sign tattoo on his arm that I liked a lot when I was younger
-and made me feel a certain kinship with a whole subculture I'd never have been aware of otherwise - "dock people" in Key West, daily life on houseboats, all that sort of stuff
-he was really great at training dogs and always kind to animals




Before this shift....
My day with the kids was great. We got this HUUUUUUGE box of strawberries from Knaus Berry Farm to make pies and muffins and waffles and syrup and all kinds of stuff out of. And some of their fresh baked bread, cinammon rolls, peanut butter cookies, and milkshakes, which we had in our backyard while we watched our chickens peck around and huddle together.

I have Jeckyll and Hyde kitchen. I started cleaning it really thoroughly this afternoon - clearing and scrubbing counters, cleaning the cabinets, spraying appliances, the floor, whole shebang - and got almost exactly halfway done when we had to go to the birthday party. There's actually a line you can trace all the way up and down where it abruptly goes from spotless and sparkling, to filthy (spattered flour, caked on dripped batter, piled dishes, crumpled wet dish towels...I have been cooking SO MUCH lately). I'm hoping to go in there after this entry is done and extend the line to at least the 3/4 mark ;)

I think we might do our private family celebrating of Easter on Monday. Because I think I'm either going to be babysitting Brian all day long or in a car with my mom most of the day...I miss Grant. He got off for his half the week off, tonight. I'm glad he's so incredibly understanding and awesome.

The kids totally don't get it. They've never even previously heard of Grandpa (though I think Ananda was around him once or twice as a baby/toddler and my mom was still talkng to him or around him a lot when not with us throughout their lives...). It's so weird to ever try to tell them anything about, like...having relatives you don't really like or talk to. Or people being sort of horrible, to themselves and each other. It's kind of unreal, how different their lives are, vs how mine was as a kid.

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