altarflame: (Default)
This morning, after I took Grant to the train and Elise to preschool, Aaron woke in terrible pain - crying uncontrollably, even yelling. It was his swollen glands.

Aaron got what was diagnosed as mumps (he was fully vaccinated at this point and there was some argument among professionals) at 3, his face swelled up like a chipmunk, and ever since whenever he gets ill, his glands get big and tender. Throughout the last year or so, though, they seem to swell and feel tender more often - almost continuously at times. It's been hard to decipher what's going on with them since Christmas, since we have had two different illnesses that have lasted weeks and they're often subtly enlarged or slightly sensitive.

Four days ago, though, with all of us better, his glands suddenly got huge like I haven't seen them in a long time. It was a Saturday and I didn't think it was worth the ER. He layed around a lot. Sunday (Easter) was the same - he layed on a couch under a blanket while the rest of us dyed eggs on the deck, and didn't eat much candy since he can barely chew :/ Yesterday it seemed a lot better - they'd gone way down and hurt a bit less. No fever.

Then today, wailing and gnashing of teeth first thing. It takes a LOT for Aaron to act like that. The silver lining in this situation is that it snapped me immediately out of my funk and into focused action. Also, Dr Geraldi was able to see us this morning and Ms Denise didn't mind keeping Elise longer.

My pediatrician - this guy -


He has a bit of a fixation.

(I apologize for my nausea-inducing angles, I didn't really get it until I saw it myself)

And we love him, and he is amazing. He came in, with his gray braided rat tail and his heavily embroidered and colorfully sewn jeans, in his Spiderman lab coat, knowing us well enough on sight to ask about all my other kids by name. This is the guy my Aunt DeeDee used to drive all the way from Key West to see, for my twin cousins, and there was actually someone there from Orlando today. He checks Annie for anemia via nail beds and eye lids rather than doing bloodwork, he diagnosed Isaac's appendicitis in his office, and he's been cheering for Elise from day 1.

So, it's a little disconcerting to see him calling in his assistant, trading notes, looking things up on his iPhone, and hypothesizing.

Anyway his leading theory is that the glands are catching a lot of drainage from the illnesses and Aaron's allergies and they're clogged and possibly now colonizing bacteria the same way our ears can. So we're doing allergy meds, decongestants and antibiotics - and he's gotta stay on ibuprofen and pedialyte around the clock so as not to get super dehydrated, since it was hurting too much for him to eat or drink and that was becoming a problem :/ He goes back Friday.

With all that in him, he was like a new albeit low energy man and wanted to go to TLC like usual.

Again I enjoyed a good day...good as in, I felt like myself and was able to do things and act human. We picked up Elise, filled prescriptions, had pasta and sauce for lunch, went to TLC. I did some dishes and had a dinner plan. I'm enjoying Grant's company.

Somebody last night left a lengthy comment suggesting she thinks I'm bipolar. Having known several bipolar people well over the years, online and IRL, my first instinct was to say "No way", but I do spend an awful lot of time thinking I need to come back and explain how good things actually are and how excited I am about x, y and z, as well as thinking it's important to emphasize just how awful it is and how I can't deal anymore. So for the hell of it, I took an online assessment that seems to be relatively widely accepted and hosted by fairly respectable looking sites, and was like, wtf?! I got a 51 and a 48 the two times I did it, 53 being the highest possible most bipolar score O_o Lots of words like severe and where to start to get help.

I talked with Grant about this for awhile. I know a LOT about bipolar because of the people I've interacted with over the years who suffer from/through it, and if that is me I think that I either have a higher set point, mood-wise, than what I've seen in others, or else I don't have the piggy backing disorders, or it's a newer development...or all three? I'm going to the doctor either way, I had already decided I want my thyroid tested because, truly, I fit that picture to a T as well. Who the hell knows.




Tonight, I want to tell you how incredibly cheap it is to make a big pot of lentil soup for dinner with a bunch of chilled pineapple for dessert. Onions, (tons of) garlic, carrots, celery, chicken and beef broth (cubes for me), tomato juice (I use some from canned tomatoes and then save the actual tomatoes for something else), lentils, water, salt, seasoned salt. It's so delicious! You can garnish it so many ways and serve it with bread or salad or bruschetta or antipasto or nothing. All of my kids tear it up, and a pot big enough for all 7 of us plus lunch for a couple of people the next day is only ~$4 with me buying all the ingredients at BJ's.

Then 3 big cans of pineapple out of a case into the freezer and that's about a $2.50 dessert for all the kids. Ran through the food processor frozen and eaten with a spoon they go crazy.

And I'd like to mention, in case anyone hasn't realized this yet, that you can google image search coupons for any restaurant you're going in, pull them up on your phone, and the waittress/cashier can scan it. The 7 of us consistently do healthy all you can eat at Sweet Tomatoes for $21 this way (it would be about $58 without the coupon deals they keep renewing).




Last, look at my hot husband sweeping the bedroom floor after putting away tons of laundry and making the kids laugh the whole drive home:
altarflame: (aaron sleeping)
Aaron's swollen cheek just kept getting worse yesterday - last night he was moaning, whimpering, crying the night away in his bed. I put breastmilk and garlic in his ear at one point, and Grant went out and bought some children's ibuprofen. This morning he was miserable, couldn't eat - and the swelling was discolored, too, and had moved up a bit so that it looked like his ear in addition to his lymph node swelling.

Sooo, I called Kristen up and asked her where she takes her kids. My experiences with pediatricians have been so horrible that I gave up on taking them at all as a waste of time quite awhile back. I've been scolded for co-sleeping, ordered to take Ananda to speech therapy when she was stuttering, ordered to have Aaron evaluated when he talked late (for mental retardation, no less), and told that I must stand across the room and not make eye contact with my child while they're being looked at or worked on, because it "just encourages them to carry on". All this so we could get mumps despite vaccinations and catch a bad staph infection at the hospital.

But I do (really, I swear) still know medicine has it's place and this was obviously one of those times. I called Kristen and she referred me to someone up in Kendall. We had to have Laura and Frank drive us since our van is still brakeless, ON THEIR ANNIVERSARY NO LESS, but they were super nice about it and had been referred to the same ped so they wanted to check him out anyway.

The guy's office is floor to ceiling Spiderman. This is automatically a big plus for Aaron. Like, huge comic-style murals all over the waiting room, dolls hanging from the ceiling behind the window where the receptionist was, stickers on the chairs. They fit us in right away even though we'd never been there before, and were incredibly nice about us being late. We had to self-pay as none of us are insured, $100 we totally don't have right now, but it was worth it.

The ped had Spiderman embroidered on his medical coat, and a 10 foot glossy movie poster dominating the exam room we were in (and nightlights plugged into the outlets). We were seen so fast, he was SO NICE to Aaron, who did really well. And then when it was over, 2 things. 1. He said, "Do you want to see where Spiderman lives?" and showed us this INSANE SPIDERMAN ROOM. Like...every patient he's ever had has been bringing him every piece of memorabilia (down to outgrown shoes and Happy Meals boxes) that has passed through their hands, for 10 years. He even has a life-size one that Blockbuster donated. And then 2.

HE GAVE US THE ANTIBIOTICS AARON NEEDED. Like, for free. I was so relieved, I knew we would have to find a way to pull from the business account and get more in debt or something, but I was so relieved.

He also had the name of a very nice, like minded cardiologist we can take Isaac to. (Isaac has a congenital cardiac anomaly, it's an extra pulmonary valve that causes no problems thus far but is supposed to be monitored annually as he grows. It's what they initially thought was causing his rapid breathing in NICU, but turned out to be harmless).

The guy was thrilled to hear that we homeschool, doesn't push vaccinations. He said I can continue the breastmilk in the ear and it will speed the eardrum healing.

Geez Louise. I was on cloud 9 the whole way home.

FYI, Aaron had the cold all of us had, but it made his one lymph node on his left jawline swell up huge. That caused fluid to get trapped in his eardrum (the pressure from the nodular swelling). Now lymph node and eardrum are both swollen, pushing against each other and infected. Poor little guy :/ He was SO GOOD, though, for all of it. Super brave, Annie told him she was proud.

May 2017

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