ext_31501 ([identity profile] altarflame.livejournal.com) wrote in [personal profile] altarflame 2014-01-07 10:46 pm (UTC)

Thank you. And yes HAVING A THING, exactly - the whole "new normal" deal...

I didn't realize you had remaining tumors. It doesn't make me freak out, but it does make me want to ask you a bunch of questions which you would (obviously) not be obligated to answer.

For the shots, most people recommend a "loading dose" initially, which is one every day for a week - then you switch to weekly. I have read stories about people who go monthly or every 6 weeks, but they are heavily supplementing with B12 nose sprays and lozenges (there's a lot of debate about sublingual absorption...), which are expensive and not covered by insurance - AND they tend to be complaining that their symptoms are not going fully away :/ We'll see. Some people do end up self injecting, which I increasingly can imagine.

One great thing is I have a doctor I love (where I've been getting them done) about half a mile from my house, and I'm usually pulling in the parking lot and then pulling back out (done) about 15 minutes later.

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